#2669 06-03-2004 12:50 PM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | OP  Platinum Member (300+ posts)
Joined: Nov 2002 Posts: 458 | Pleased to announce that we have the details worked out on the "First Annual OCF Friends Gathering" At the Imperial Palace Hotel and Casino in Las Vegas Nevada on the weekend of September 24th, 25th.'' Friday night, Sept 24th, arrival, meet at hospitality room for name tags, snacks, just general meeting and greeting and a hearty "Hello" Saturday, no formal activities planned for the day time, (as of yet). Buffet dinner planned for Saturday evening at 6:00 p.m. followed by talk by Brian and possibly others, and a fun raffle. Have some neat prizes already set, but anyone who wants to donate raffle prizes please contact either Dinah or myself. We have special rates set up with the Imperial Palace as follows. Thursday 9/23 $59.00 Friday/Saturday 9/24-9/25 $79.00 (not the hotel does NOT accept Saturday arrivals Sunday 9/26 $59.00 Room rate is based on one or two people. There will be an additional charge of $19.00 per person for over two people. People attending will be responsible for making their own reservations. Call 800-800-2981 for reservations; please identify yourself as being with the Oral Cancer Foundation for special room rates. Room rates are net, based on single or double occupancy and subject to Clark County Room Tax of 9% Price for the Banquet will be $40.00 per person, payable in advance. This will cover the banquet, Friday snacks, and incidentals. Any left over will be donated to OCF. Bob (JetAgeHobo) will be collecting the money for the banquet, please have checks to him by 3 weeks before the event if possible. Make the checks out to Robert Szabolcsky Mail to Robert Szabolcsky Apt 1219 14781 Memorial Drive Houston, TX 77079 Please e-mail bob at [email protected] to RSVP for planning purposes. Please let him know the number of people coming, their names, and if they will be attending the banquet. Hoping this to be a great time for all, a good chance for meeting all the others we've been pouring our hearts out to and a chance to personally thank each other for our mutual support. Many thanks to the other members of the planning commitee, Dinah, Dan Bogan, JudyU, and Dee for their help and support. We hope to see you all there.
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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#2670 06-03-2004 04:50 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Darn, I am so dissapointed, I won't be able to come on this weekend! It's the weekend of Neptune Festival here in Va. Beach and is our first local competition. I have got to be here for it, it's part of my job and my business.
I can't tell you how dissapointed I am.
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#2671 06-03-2004 06:02 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Oh boy, looks like fun! Ed 
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#2672 06-04-2004 03:37 PM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2004 Posts: 372 | Thanks to all of you for the hard work of getting this all set up...we are trying to work it out to come. It would be so awesome to meet everyone face to face! And Vegas is sooooo much fun...we love it!
God Bless,
Debbieb
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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#2673 06-04-2004 04:45 PM | Joined: Mar 2002 Posts: 4,918 Likes: 65 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 65 | I wish to compliment those who are making this possible, entirely through their own efforts. These kind of things take a lot of effort and work. I have some interesting items to add to the raffle/ open auction, and of course look forward to the opportunity to meet those who constantly inspire me.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#2674 06-05-2004 05:31 PM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Nov 2002 Posts: 458 | Just a move up to the top
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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#2675 06-12-2004 05:02 PM | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2002 Posts: 546 | I needed a reminder to email Bob, so another move to the top in case anyone else does, too.
Rosie
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
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#2676 06-30-2004 12:38 PM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Nov 2002 Posts: 458 | Since it's a slow "News Day" and we can be very thankful for that, I thought I"d run this up to the top as a gentle reminder, and to let new people know about the get together in Vegas.
Please remember to have checks sent over to the above address by August 20th and send me an e-mail so I can tell the banquet people how many, etc.
Thanks
Bob
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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#2677 07-08-2004 07:11 AM | | Anonymous Unregistered | | Anonymous Unregistered
| Kris,
This is the information so far on the Vegas Get Together...Thank you - you gave us the perfect opportunity to move it back up to the top.
It's getting close guys, so get those reservations off to Bob for dinner and call the hotel for your rooms!!!! Don't forget to mention OCF.
Dinah | | |
#2678 07-09-2004 03:29 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2003 Posts: 382 Likes: 3 | Don't know hos I missed this when it was first posted. I am amazed at the prices for rooms!! Nice job! I'm checking on the airfare today. Hope we can make it. Can you use a basket of Northwest salmon to add to the raffle?? - Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
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