#2601 06-01-2004 02:47 PM | Joined: Dec 2003 Posts: 116 Gold Member (100+ posts) |  Gold Member (100+ posts)
Joined: Dec 2003 Posts: 116 | Dan,
I can't help but feel like we're all holding a collective breath for you. The board is eerily quiet tonight. I wish you strength and courage with what you are facing.
love,
Christine
Wife of Scott: SCC, Stage I retromolar 10/02--33 rad; recurrence 10/03--Docetaxol, 5FU, Cisplatin; 1/04 radical right neck, hard palate, right tonsil; recurrence 2/04--mets to skin and neck; Xeloda and palliative care 3/04-4/04; died 5/01/04.
| | |
#2602 06-02-2004 04:43 AM | Joined: Mar 2004 Posts: 164 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2004 Posts: 164 | Christine,
I know what you mean about the boards being quiet. I think everyone is stunned by all the disappointing news lately. I've been checking for the past few days it's much quieter than normal. I think about you often.
Dan my thoughts are with you and your family.
Lynn
Stage 3, N0, M0 oral tongue cancer survivor, 85-90% of tongue removed, neck disection, left tonsil removed, chemo/radiation treatments, surgery 11/03, raditation ended 1/04, lung mets discovered 4/04,
| | |
#2603 06-02-2004 07:00 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi all
Like everyone else I'm shattered by the constant barrage of bad news that is being posted.. going through the motions of replying .. but with little enthusiasum.. this won't do will it Guys? Come on someone needs to jolt us back in to positive mode...
prayers.. love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
| | |
#2604 06-02-2004 08:38 AM | Joined: May 2004 Posts: 137 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: May 2004 Posts: 137 | Well I will give it a try, Ya'll ready? Well here goes. They told me that I would only make it 5 years, tops,, that was 15 years ago. I walk everyday. I play with the grandkids, when I want to or need to. They have a way of making everything seem allright. I can still dress myself. I read, I make quilts, I crochet, I paint. I can still do some of the things that I used to do. It is kind like half empty/half full. How do you look at things? I know that I will never win this battle, but I will not give into it. I will live this life until there is no more. I will be DAMMED if I act dead, while I am alive. There will be plenty of time to lay down and rest, when I am gone. So how did I do? These words are what I live by, or try too. I cry, I get down, I have very very bad days. This is what makes me stronger I feel. So come on everyone, it isn't over yet.. We are all still here talking. Praying, living, laughing, crying what ever the emotion we are in we are here to experience it and we are feeling it. We got some bad news today, maybe good tomorrow. I know that my good can turn to bad in an instant. But my bad could turn to good in one as well.,I have a long long way to go, and a short time to get there. But I would like to know that I gave myself a chance, that I didn't throw in the towel. As long as I can, I will do what ever I have to, to have one more day. Always Vicki Lynn. P.S. Last night I cried for a while, why, because I deserve a good cry every know and then. So do you. | | |
#2605 06-02-2004 09:34 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Thanks Vicki
Well said lady.. jolted me out of my personal black hole.. If you can keep that attitude then I can only try to imitate...
prayers... love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
| | |
#2606 06-02-2004 09:35 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Weell, folks, if that don't perk y'all up! I agree it has been tough lately. Miss Vicki, you have been through what any three of us have and I must admit, you are an inspiration to me. We must all collectively shed our tears thinking of our "family" right now. Remember, this is the day the Lord has made, let us rejoice and be glad in it. Be thankful for every day we are blessed to be in this world. I remember the last week of my mother's life and how many tears I shed. I tried so hard to conceal them but as the end kept drawing nearer, she caught me often. She smiled up at me and said please don't cry for me. Be happy at every day of my life and especially every moment we shared. Today, I want to tell each and every one of you that I am HAPPY, yes  , at every day I have been blessed with such a great "family". Y'all are certainly part of my family and will always be. Sieze the day and MAKE THE MEMORIES! YBIC, Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| | |
#2607 06-02-2004 09:47 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Right back at Ya Ed. Cheers Marica 
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
| | |
#2608 06-02-2004 11:05 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Thanks Vicki!
We're sure glad to have you here!
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | |
#2609 06-02-2004 01:14 PM | Joined: Dec 2003 Posts: 207 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Dec 2003 Posts: 207 | Here's the conclusion I reached about OCF today -- hopelessness and despair have very few friends here... maybe none at all.
You want to cry? Sure. You want to vent and get angry? Go for it. You want to share your fears? Absolutely. You want to celebrate the good reports? Anytime, any day. You want to ask questions, even those that have been asked dozens of times by others? The doors always open and shoulders are always available.
But if you want to give up and lay down, this is not the place for you... Wow...
Let me say again -- it's an honor to be associated with such great people who truly know how to live and face anything and everything that life throws at them... Thanks for lifting my spirits time and time again...
Eric
Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
| | |
#2610 06-02-2004 04:11 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Daniel,
Leave it to someone with your strength of character to try and make all of US feel better about your situation. It will be such an honor when I meet you in September.
My 6 year old grandaughter, Kayla, climbed up on my lap tonight and asked me to tell her about "counting blessings". She's quite dramatic and loves to talk about things like this. So I explained to her what it meant and we started counting off her blessings........her mom, me,grampy, sister, etc. For myself I sent up a thank you for this board and my friends on here that bless my life each day. This board allows me to express my "cancer baggage" to others that will understand me. I have the luxury of unloading without burdening my family with feelings they would be hard pressed to understand. My greatest wish has been that this cancer not "define" me where my children are concerned. I don't want them to be "the kids whose mother has cancer". I don't want them to think of mom everytime they hear the word cancer. This board allows that, it improves my mental health, giving me a better quality of life...........making me a better wife and mother! The boomerang effects are astounding and I wonder if Brian realizes the long arm of this board. This little Maine raised backwoods girl has friends all over the world now.
You are all in my "blessings" tonight and every night.
Love,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
| | |
| Forums23 Topics18,247 Posts197,132 Members13,319 | | Most Online1,788
Jan 23rd, 2025 | | |
|
