 
#2490 05-17-2004 01:07 PM | Joined: Jan 2004 Posts: 2 Member | OP  Member
Joined: Jan 2004 Posts: 2 | Hello, this is Dee's daughter, Chiara. Just wanted to let everyone know that Mom has made her journey to Alabama and is currently staying with my older brother. I will try to keep her up to date on what is happening on the board, but she is about an hour away, so she will not have access to my computer everyday. Thanks, Chiara | | | 
#2491 05-17-2004 03:40 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Chiara,
Glad to hear your mom got there safe and sound. You take good care of her!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#2492 05-17-2004 04:34 PM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2004 Posts: 372 | Thanks Chiara,
My hubby and I will be moving to Birmingham in a few months if all goes well with Dan's next few checkups and tests. Maybe we can meet up sometime?! Your mom has so much spunk!!
God bless,
Debbie
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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#2493 05-18-2004 07:51 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi Chiara
Tell your Mom my morning mail ain't the same.. If you are just 1% like your Mom please stay with us on this forum.. we need people like you..
Love and Hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#2494 05-18-2004 02:08 PM | Joined: May 2004 Posts: 3 Member | | Member
Joined: May 2004 Posts: 3 | Glad your mom made the trip. Also glad she has family around now. I was a little concerned about her, especially her post, smashing things. I know we each do what we have to do to get through each day, but I don't know if I personally could break something that was apparently so special to my loved one. I guess in the end it is just a thing and she has all her wonderful memories that no one can take away. Anyway, tell her I send my love and hope she gets settled in quickly and is back here on the board soon too. LynnS | | |
#2495 05-19-2004 12:24 AM | Joined: May 2003 Posts: 33 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: May 2003 Posts: 33 | Well I will say this about her smashing the bull dog, that is if she really did, but lets just say she did, why would you smash something that someone you claim you love held very dear to his heart. My father had that made for my grandmother 23 years ago as a Christmas present from me and my brother, and that was the only thing I wanted because it belongs to my family. If she smashed it, it was to hurt me and that is why she posted it in here, was to try and hurt me. Now she claims in an email she sent to me that she did not smash it but that she was going to give it to her grandson. So I really don't know if she smashed it or not, but if she did I would rather Charlie the bull dog be smashed then to be with her. | | |
#2496 05-19-2004 11:28 AM | Joined: Apr 2003 Posts: 148 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2003 Posts: 148 | Please address these issues away from the board. I am sorry for your loss, Packer66 Littlegirl, but this detracts from the reason we are all here.
Chiara, Welcome and give hugs to your mom, her presence is missed.
Sincerely,
Lisa
Lisa
SCC of Tongue Stage 1 (T1,N0,M0)
partial glossectomy,modified neck dissection 4/14/03
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#2497 05-19-2004 11:41 AM | Joined: May 2004 Posts: 3 Member | | Member
Joined: May 2004 Posts: 3 | Sorry to have touched on such a touchy subject. Had I realized, I wouldn't have ever mentioned it. I do agree that any personal problems you have should not be aired here. | | |
#2498 05-19-2004 03:35 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | So.................how bout them Red Sox?? My weak attempt to lighten it up.
Love to all,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#2499 05-19-2004 05:45 PM | Joined: Mar 2003 Posts: 189 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2003 Posts: 189 | Dear Dee,
We know you are out there, and glad to see that you are settling in. Twink, you are a dollbaby.....give her a hug for me, ok?
Love,
Mandi
Husband diagnosed with stage III tonsil and floor of mouth cancer in August 2002. Three rounds of chemo/42 RAD treatments. Upper right lung lobectomy in March 2003. (Benign)
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