#24741 11-03-2007 09:52 AM | Joined: Aug 2007 Posts: 580 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2007 Posts: 580 | Frank, You are in the right place and I echo others who agree you are not premature in posting. This site, the people who are here and the content will all become very useful to you. I have not had Oral cancer but have fought the fight. I am here because it is the best place for me in my profession to be of use for people who have questions related to Oral Cancer. This site is also one of the only sites regarding OC that is moderated on a regular basis by knowledgeable individuals who will, always with respect, add, correct or on some occasions ban the snake oil supporters. Brian, in my short time here, has chimed in on many occasions in order to maintain the integrity of the site he founded. My thoughts and prayers are with you. Please keep us posted. You are not alone!!
Mike
Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend. Live, Laugh, Love & Learn.
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#24742 11-03-2007 12:32 PM | Joined: Sep 2002 Posts: 642 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2002 Posts: 642 | I ate at Prejean's in Lafayette a couple of months ago. It was a little touristy, with the Cajun band and the stuffed alligator, but the Redfish, with a little Ponchatrain sauce was awesome. Plus, Cajuns have to be some of the friendliest people in the USA, and I love those accents. I could not have eaten nor tasted that wonderful Cajun food 3 years ago...but the swallowing function improved and the taste buds came back...just can't handle the spicy Cajun stuff...no Tabasco sauce for me.
Today Texas was playing so badly against Okla. State that I turned the game off and was watching your LSU Tigers and other stuff. I flipped back on and UT was tied 35 to 35 and won the game! Let's hope LSU will get it back together now in the second half and put Bama away.
Wishing good health and recovery to you all...
Danny G.
Stage IV Base of Tongue SCC Diagnosed July 1, 2002, chemo and radiation treatments completed beginning of Sept/02.
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#24743 11-03-2007 03:27 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2007 Posts: 735 | Frank
I have read some of your post ... and in some ways you remind me of a dear freind ..that I met on here that is NO longer with us . I don't know why that is . But you do , and i don't know if anyone else see's it ....but I can tell you That I look forward to reading your post and your upbeat spirit..Stay with us and we will help pyou through this !
Shar
Sharlee 35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#24744 11-03-2007 08:18 PM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | "OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 | OMG here you all go again,talking a foreign language!!!It is so frustrating for us Brits,lol.
Perhaps an anglo american translation service can be added to the search engine facility lol.
soo....what is ponchatrain sauce,and who are LSU? forgive my ignorance.
liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#24745 11-03-2007 10:18 PM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Sep 2003 Posts: 1,244 | Liz Mushy Peas, Toad in the hole, spotted dick, black pudding, parkin. I think food is the most difficult translation especially between USA and Brit's. LOL Anyway like you I have no idea what the sauce and LSU are. Sunshine.. love and hugs Leicester
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#24746 11-04-2007 12:44 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: May 2007 Posts: 632 | Hull KR, MAn Utd, Spurs, Five NAtions, Formula One--there, got our own back on the sport front too!! Worst thing I ever did in California was ask for 'country gravy' which was on the menu--conjured up the Bisto adverts!--It was white and runny and ---YUK!!!!!!
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4 6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine therapy September 07 Now dying to live!
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#24747 11-04-2007 12:49 AM | Joined: Nov 2007 Posts: 45 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Nov 2007 Posts: 45 | Wow. So many replies. Well LSU finally pulled it off! They beat Alabama. For you Brits on here, LSU is Louisiana State University. They played football (American Football) Against the University of Alabama yesterday afternoon. Now the coach of Alabama used to be the coach of the Louisiana State University football team. His taking the job at Alabama did not sit well with LSU fans. Last night's game was the revenge the LSU fans were looking for.
As far as Pontchartrain sauce...I'll let someone else handle that one.
Well I think I slept well last night. I feel ok this morning. I woke up a couple of times tossing and turning. I have tried to stay busy to keep my mind off of things. It seems to be working. The best part of my day seems to be when I log on here. I enjoy reading and sharing with all of you.
I am curious... how did you all know you had this disease? What signs did yo have that made you get it checked out?
Well, now that my yard work is done, I'll have to find something to keep me busy. I guess I'll watch the Saints play Jacksonville. (For our British friends, The New Orleans Saints is a professional American football team).
Have a great day!
Frank
South Louisiana - Cancerous growth removed from lip 10/07. Lesion removal & biopsy done 11/7/07 - no signs of cancer in area. PET scan done. No signs of cancer in Head & neck. Something in chest. CT to be done 12/20/07
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#24748 11-04-2007 01:33 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: May 2007 Posts: 632 | For me Frank, I sort of 'knew' from day 1, back in January. I just woke up one morning with a numb bit on my lower lip--it hadn't gone away by the next day so I 'Googled' it. Being a 57 year old smoker and drinker , I just 'ticked all the boxes' I went to the doc who said he had no idea, go see a dentist, went to dentist who was very young, but very thorough--full exam and X-Rays and immediate referral to Maxiolfacial surgeon. The wonderful British Health Service meant it was April before I finally got to hospital, and then had to wait 3 weeks for 'urgent' MRI. As it turns out, the wait probably didn't make any difference prognosis-wise, but oh boy, did my jaw hurt and look ugly for the 4 weeks before biopsy!
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4 6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine therapy September 07 Now dying to live!
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#24749 11-04-2007 06:46 AM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | "OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 | I knew the moment i set eyes on Robins ulcer it was going to be bad news. It just didnt look like anything that should have been there,and the white base just brought back things i learned in nursing school. BRENFRAN....wash your mouth out.If we are talking british football at least make it a yorkshire team!!!!!!! 
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#24750 11-04-2007 07:39 AM | Joined: Aug 2006 Posts: 199 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Aug 2006 Posts: 199 | Frank - I kind of just knew that the ulcer on my tongue was cancer, even though at first several doctors kept telling me they thought it was not anything bad (which delayed my diagnosis as even though deep down, I knew, I really didn't want to acknowledge it) I am a nurse, though, and an ulcer on the side of my tongue that wouldn't go away was a pretty classic sign...so I finally said let's stop messing around, and just do the biopsy!!
Ginny M. SCC of Left lateral tongue Dx 04/06,Surgery MDACC 05/11/06: Partial glossectomy with selective neck dissection. T1N0M0 - no radiation. Phase III clinical trial ("EPOC" trial)04/07 thru 04/08 because tests showed a 65% chance of recurrence. 10 Year Survivor!
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