#24662 10-29-2007 09:23 PM | Joined: Oct 2007 Posts: 43 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Oct 2007 Posts: 43 | Miss,Colleen My mom had something like that happen when we evacuated. except instaed of dropping it she placed it in her mouth wrong and it got STUCK. O.K. so she was brand new to this whole thing and she was in a strange place and it really was the pits and well she freaked out. My dad got it out and she got it back in alright but I will never forget how scared she got to do her teeth for about I guess a couple of months afterwards. She would get so scared that her mouth would get to tight to even get it out. I taught her some yoga but I really dont know if they helped or if she was just humoring me. In the end she just had to see that it was okay and that she could trust herself to do it correctly. I guess that really didnt have anything to do with your story but we had been talking about it just tonight and I thought of that when I read your story. I dont really know why but for some reason I fell better just writing about it if you know what I mean. I apoligize for rambling but it has been one of those rambling days. I cant wait to meet you face to face and I know that my mom feels the same. Please tell me how your app. goes and remember you will be in my thoughts good luck. Sincerly Dragon
Let me be the lender of strength, wisdom, and heart. Let me be the one who helps you spread your wings.
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#24663 10-30-2007 10:44 AM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2007 Posts: 735 | Dragon
All I can say is that you are like a rare treasure that you find walking along the beach when you least expect it !! A rare and beautiful jewel that brightens your day and makes you see the beauty in things !!!
Shar
Sharlee 35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#24664 10-31-2007 11:27 AM | Joined: Oct 2007 Posts: 43 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Oct 2007 Posts: 43 | Shar Thank you very much!! Dragon
Let me be the lender of strength, wisdom, and heart. Let me be the one who helps you spread your wings.
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#24665 11-04-2007 01:09 AM | Joined: Nov 2007 Posts: 45 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Nov 2007 Posts: 45 | Dragon,
Reading your experiences makes me very happy to know that there are people out there who are bigger than life itself. You most certainly one of them.
Frank
South Louisiana - Cancerous growth removed from lip 10/07. Lesion removal & biopsy done 11/7/07 - no signs of cancer in area. PET scan done. No signs of cancer in Head & neck. Something in chest. CT to be done 12/20/07
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#24666 11-08-2007 05:16 PM | Joined: Oct 2007 Posts: 43 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Oct 2007 Posts: 43 | Frank Thank you so much. That means so much to me you will never know again thank you. Dragon
Let me be the lender of strength, wisdom, and heart. Let me be the one who helps you spread your wings.
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#24667 11-13-2007 09:53 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Sometimes we sit and read and marvel at the strength and treasures of others but on this day I have to say I truly have crossed paths with someone that, as Frank says, is bigger than life. I know in my heart that Dragon, you are who you are partly because of your mother but I see the greatness in what you will contribute to our entire society all the days of your life! Your mother has given you an amazing legacy to carry on and you are doing so with great conviction. You will always be a quiet and humble leader of people. I hope whatever you become in life as an older person, you set your sights and goals high because I know the wisdom you possess at your age is nothing compared to what you can accomplish in your lifetime.
You go girl!
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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#24668 11-13-2007 04:15 PM | Joined: Oct 2007 Posts: 43 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Oct 2007 Posts: 43 | Ed Thank you so much. I started posting on here on a whim and I am so glad I did. I think I didnt even know just how much I really needed someone to say the things that so many people have said to tell me that I am ok and that I can continue doing ok. So thank you so much and please remember that you have said something today to shed a little light on someones day thank you. Dragon
Let me be the lender of strength, wisdom, and heart. Let me be the one who helps you spread your wings.
| | | | Joined: Sep 2012 Posts: 10 Member | Member Joined: Sep 2012 Posts: 10 | Wonderful post. I'm deeply touched. I was about your age when my mother was sick with the same thing. How horrible that you had that massive hurricane to also cope with.
Be sure that you have someone to talk to about all this stress....even if you need to see a therapist. I didn't realize the toll it took on me.
And if you haven't done so already, I hope you will consider the Gardisil (sp?) shots. | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Wow - crazy story.. so glad your mom is doing better. It sounds to me like she didn't have any radiation or chemo as follow up. This is good in one way (less fall out symptoms) but also something to keep an eye on. She needs to be very very diligent with her mouth. If she spots even the smallest thing that seems abnormal, or a lump in her neck she needs to get back to her dr. immediately. Hugs and best of luck, you are an awesome daughter and your mom is lucky to have you.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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