#24642 10-24-2007 06:30 AM | Joined: Oct 2007 Posts: 43 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Oct 2007 Posts: 43 | Hi, I am seventeen years old and my mom is two years out of squeamus cell carcinoma surgery that removed her palate and five teeth. It started as a small sore in her cheek and got worse really fast. The doctors first told her that it was not cancer and then that it was they kept going back and forth three or four times untill finally they biopysed it and finally it showed for sure that it was cancer. they scheduled her for surgery the next week, and she went in really early in the morning and came out in the afternoon. I first saw her in the ICU that night and then came back in the morning to find her in a private room where they had forgotten her and not given her her pain meds. she was in so much pain it hurt her to cry. we got the nurse and my dad was about to blow a gasket while kept trying to downplay it. after that me or my dad was always with her i slept in a chair for the week she was there everytime her machine went off i had to go get the nurse cause they never came on time. we finally got her home and two weeks later katrina struck, My mom couldn't drive so we took our van and piled 4 dogs,4 birds, a guinea pig, and a fish (not to mention the 4 humans) and drove to texas. needless to say my mom couldnt get any treatment out there and two weeks later we came back to find that there were no doctors anywhere. finally, we managed to locate a one of her doctors and two and a half months later we managed to get her seen. that was when she started the long,long road to recovery. the phisycal therapy and the pills and the pain and yet she remained my mom through and through. she's done with the phisycal therapy. its been two years and i think that were beginning to see the old mom again. there are still times when i cant seem to reach her but we always get through it and there worth every minute of it when shes happy again. for any teens out there that have gone through this or are going through this remember this they raised you and took care of you now it time to give some of that back.
Let me be the lender of strength, wisdom, and heart. Let me be the one who helps you spread your wings.
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#24643 10-24-2007 08:11 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: May 2007 Posts: 632 | Dragon, That is just one awesome post! How proud your family must be of you and what a wonderful person your mom must be. It makes my experience, and possibly some others here, pale into total insignificance. There are many on here with teenage daughters who will be so glad to show your post to them! No wonder your mom feels happy with a daughter like you, after all you've been through. Well done girl, for being there, for caring, and for sharing Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4 6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine therapy September 07 Now dying to live!
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#24644 10-24-2007 01:46 PM | Joined: Oct 2007 Posts: 43 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Oct 2007 Posts: 43 | Brenda
Thank you so much for the feedback. It truly means so much to me to know that someone was impacted by my story in a good way I hope. You are truly an amazing person yourself. Again thank you. Dragon
Let me be the lender of strength, wisdom, and heart. Let me be the one who helps you spread your wings.
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#24645 10-25-2007 02:54 PM | Joined: Apr 2007 Posts: 93 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Apr 2007 Posts: 93 | Dragon,
You are truly an amazing daughter to care for your mother with such love and compassion. I know that teenagers can be pretty self involved and it is an inspiration to know of such as you. Your mom is a fortunate women and I know that the love and guidance she has given you is the reason why you are such an amazing and giving person. Sounds like your mom is on the road to recovery and you and your family are in my thoughts.
Nancy
Caregiver to sister Connie, dx 2005, scc tongue, 4 surgeries inc. radical left side neck dissection 7/06, 35 IMRT, and 7 cisplatin 2/07, passed away 8-11-07, 51 yrs. young, fought with courage, strength and grace, found peace on her new journey.
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#24646 10-25-2007 03:17 PM | Joined: Oct 2007 Posts: 43 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Oct 2007 Posts: 43 | Nancy Thank you so much for your confidence in me. I just hope that I can live up to the expectaions of everyone. I also know and will never forget that I am truly blessed to have the mother that I do. You too are in my thoughts. Dragon 
Let me be the lender of strength, wisdom, and heart. Let me be the one who helps you spread your wings.
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#24647 10-25-2007 03:29 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | DEar Dragon, Boy, have you been through a rough time ! And at an age when you should be out having a ball. You sure have had to grow up fast. I think you can get some of that "playing" in later  cause you sure deserve it. On the other hand, the challanges of adult life will perhaps not be so hard for you, because you have proved to yourself that you can handle what ever is handed to you. I hope you are very proud of yourself right now. I am proud to know you.  Amy in the Ozarks
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#24648 10-25-2007 03:46 PM | Joined: Oct 2007 Posts: 43 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Oct 2007 Posts: 43 | Amy Thank you so much for the compliment all I can do is hope I will continue to live up to everybodys expectaions  I have read several of your posting and you yourself are an amazing person. again thank you for your confidence in me. You are in my thoughts. again thank you. Dragon 
Let me be the lender of strength, wisdom, and heart. Let me be the one who helps you spread your wings.
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#24649 10-25-2007 04:16 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | Dear Dragon- please remember, dear young lady, the expectations you need to live up to are ONLY YOUR OWN! We here at OCF, who are mostly very much older than you, are giving you a hugh hug for dealing with the terrific challanges presented to you at a very young age. If you were a child of mine, I would recommend that you find a good therapist or guideance counselor to help you put some of these experiences into a place where they don't rear their ugly heads in later life. You should be really proud of yourself for what you have handled. And you need to remember that you have sacrificed alot of yourself also, at an age where many kids could not handle the pressure. Be proud AND also recognise that you deserve to take care of Dargon too. GrandMa Amy in the Ozarks
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#24650 10-25-2007 05:17 PM | Joined: Oct 2007 Posts: 43 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Oct 2007 Posts: 43 | "GrandMa"Amy Thank you for the beautiful comments and for caring. I appreiciate your concern so much. I promise you that I am taking care of me too. I have scraficed some but so has eveyone here and I will promise you that I wont forget that. Thank you so much for the concern it means so much to me you have no idea. you guys will always be in my thoughts. "Baby Girl" Dragon 
Let me be the lender of strength, wisdom, and heart. Let me be the one who helps you spread your wings.
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#24651 10-26-2007 05:54 AM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2007 Posts: 735 | Dragon
Wow ..to have gone through watchin your mom suffer through this and then Katrina, and still have the positive and nonselfish attitude is AMAZING !! You truley are a remarkable young lady and I am sure your mom is sooo soo proud !!
I am a MOM of 5 and I know that it is hard and scary on the children , and they ALL deal and handle things differently. BUt in todays world( I also work alot with teens) Teens are soo preoocupied with their own needs and wants That It is sooo refreshng and heartfelt to see someone soooooo Caring of someone elses. At no time do you speak of yourself.
I agree with Amy , You also need to worry about you as it is ALOT to have gone through at such a young age ..EiTher one alone is more then one should have to have endured. Please know that we are all here to hold you in our hearts and listen , laugh and even cry with you if need be !!!
Shar
Sharlee 35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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