#24463 10-06-2007 01:23 PM | Joined: Oct 2007 Posts: 5 Member | OP  Member
Joined: Oct 2007 Posts: 5 | Hello. I am a new member and currently batteling adenoid cystic cancer in the sinus.
I was diagnosed while I was 4months pregnant and had to have a 9hour craineotomy and rhinotomy to have the cancer removed. I am currently undergoing radiation now and the side effects are very bothersome. I need a friend. Someone who understands. I am so young. I am scared to death. I have four children that I have to live for.
ACC stage 2 in lateral nasal wall, Craniotomy and Rhinotomy 5/15/07. IMRT started 8/30/07. kimberly mitcham
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#24464 10-06-2007 02:25 PM | Joined: Jul 2006 Posts: 68 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jul 2006 Posts: 68 | Welcome.You are in the right place,there are people in here that can answer you,i'm not sure.I had the scc of the tongue stage 2 ,i come in here and listen.Good luck and i hope you find the answers you need,you are in the good place to get them answers.
Bless You
Lynn
linda anderson
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#24465 10-07-2007 02:35 AM | Joined: Oct 2007 Posts: 5 Member | | OP Member
Joined: Oct 2007 Posts: 5 | Thank you. This is my second cancer. A year and a half ago I had thyroid cancer. And was shocked when I sneezed a tumor out of my nose. The surgery went well and the baby did fine. We got clear margins and had no perineural invasion. But it was in the nasal bone and it was the aggressive type solid. I am doing IMRT radiation to the face and I look and feel awful. I asked to stop treatments because the side effects are so bad. Does anyone know about the dosage amount for radiation to be effective? I am stopping at 5200. Any suggestions about if I am doing the right thing or not?
ACC stage 2 in lateral nasal wall, Craniotomy and Rhinotomy 5/15/07. IMRT started 8/30/07. kimberly mitcham
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#24466 10-07-2007 02:48 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hi Kimberly, being scared is par for the course no matter what your age...............cancer scares all of us! My aunt had your type of cancer, the exact same type. She underwent the radiation when I was a kid and she just died from old age (86) last year. She did have dry mouth but not horribly but until someone told me a few years ago about her cancer, I would never have known. She lived a full life after treatments, that's for sure.
Good luck with this. The treatments are touch but needed.
Take care,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#24467 10-07-2007 03:16 AM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | Kim
As minnie said, being scarred is normal. I too am a young pt. and a MOM of 5 .I didnt have Rad so I cant answer that question or actaully any of your paticular ones as mine was of the tongue . But I can tell you that I am always here if you need to just chat as I understand all the other "aspects " of the disease, and just being a mom ...LOL. I wish you the best and hopefully you have some good drs who are helping you make the best decison for you and your new little one !
Shar
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#24468 10-07-2007 05:10 AM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | There is a brilliant and very proactive young member on this site called Chelle,she is in her early twenties and is a few months post treatment for cancer of the naso-pharynx.I am sure she would be very happy to contact you and answer any questions you may have.
love liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#24469 10-07-2007 06:22 AM | Joined: Jul 2007 Posts: 45 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jul 2007 Posts: 45 | Hi Kim,
I'm Michelle. Last year i was diagnosed with Nasopharyngeal Carcinoma. I had a 4" tumour that came from the back of the Nasopharynx and down my left nostril and was unable to breathe through that side. It had also metasised to a lymph nhode in my neck and i had a node in my synus.
Before i was diagnosed i suffered with really heavy nose bleeds and heavy nasal discharge. My G.P. had been treating me for a synus infection for 6 months before they reffered me to the ENT department.
I can really apreciate how difficult you're finding the R/T.
I used Radiance Skin Gel before and during R/T. & i found it really helped my skin from the burns.
The reason the treatment is so agressive is because when you're young they feel you can bounce back from it and come out the other side. & even though when you're in the thick of it it seems like there's no way out it honestly DOES get better.
I had 6 cycles of high dose chemo & 6 and a half weeks of Radiotherapy. By the time they'd finnished even a size 0 was too big for me!
But i'm great now! I finnished treatment in december, and this month i'm opening my own dog grooming salon which was my dream before all this mess started!
I'm goin to send you a PM also.
Keep your chin up!
It will get better!
Michelle
Undifferentiated Nasopharyngeal Ca. T3N1M0 stage: IIb. diagnosed: June 2006. 6cycles of high dose chemo (Cisplatin & 5FU). 6 & half weeks (33sessions) radical R/T
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#24470 10-07-2007 01:10 PM | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | ...FOUR children...WOW! What an accomplishment, Kim! As others have stated, you're young...you CAN do this...Your new friends are here for you...hang in there!
Lois & Buzz in NC
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
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#24471 12-14-2007 09:20 AM | Joined: Oct 2006 Posts: 3 Member | | Member
Joined: Oct 2006 Posts: 3 | Hi Kimberly: I hope you are doing better now. I am a 47year old woman and had maxillary sinus cancer last year. I too had major surgery incluing a total maxillectomy followed by very harsh radiation. Last December I could not eat or even drink anything, and now ONE YEAR later am eating normally and tasting food. It will be a hard year of recovery for you even after the radiation is over. Please hang in there and believe that you will feel better and you will be there for your kids. | | |
#24472 12-14-2007 09:34 AM | Joined: Aug 2007 Posts: 580 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2007 Posts: 580 | Kim,
Hi and welcome.
This is the place to be in your current situation.
You are in my thoughts and prayers.
If I can be of any help let me know.
Mike
Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend.
Live, Laugh, Love & Learn.
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