#2333 04-19-2004 07:23 AM | Joined: Apr 2004 Posts: 18 Member | OP  Member
Joined: Apr 2004 Posts: 18 | I wanted to share with you all that my concerns about my treatment has urged me to call my doctor for a referral to our local cancer center,she wont be back in her office till tomorrow,but the secretary said she would pass the info on to her,so hopefully,I will get into see the oncologist be the end of the week.Thank you for allowing me to share my fears and for helping me make the decision for another opinion to hopefully ease some of my fears,this is my life and I have to know I am doing all I can to beat this nightmare..my cancer was SCC T1 tongue,had surgery only | | |
#2334 04-19-2004 06:17 PM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2002 Posts: 458 | Good for you, keep bugging the doc. Even my oncologist has suggested getting a second opinion from another cancer center if I didn't get satisfactory results from the one he's connected with.
You have to be comfortable with your treatment during all this, or the worry will make you crazier than the cancer itself will
Bob
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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#2335 04-19-2004 11:22 PM | Joined: Apr 2004 Posts: 143 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 143 | Good for you, get that second opinion, and a third one if you want, it`s your life! And keep bugging your docs..........I wore Frank`s docs out, to the point that if I was seeing a fistula developing, all I did was call and say, this is what I need............so keep at it..........Hugs, Dee | | |
#2336 04-20-2004 05:39 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Just remember the doctors are treating so many people these days that they tend to focus on the disease and not the person. You do whatever it takes to feel comfortable with your level of knowledge and the treatment you are receiving. When my mother was terminally ill with ovarian cancer there were even times I emailed pictures from a digital camera to the head of GYN Oncology and we pre-admitted her to avoid the 7 hours in the emergenc room. Find the path that gives you peace of mind.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#2337 04-20-2004 05:46 AM | Joined: Apr 2004 Posts: 143 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 143 | Ed, we did the same with emailing pics, to our plastic surgeon, lets face it, Frank`s anatomy was so screwed up.....docs up here did the best they could...but I stayed in contact on a weekly basis, with plastic surgeon,,,,,,,,Bless the Internet............Dee | | |
#2338 04-24-2004 01:25 AM | Joined: Apr 2004 Posts: 18 Member | | OP Member
Joined: Apr 2004 Posts: 18 | Thank you all for your support.I saw the radiation oncologist yesterday,he went over all of my pathology,my neck CT,talked with me for a long time and examined me thouroughly.He agreed with everything my ENT said,he said mine was so small and early that he felt the waitful watching is enough.I pray that these 4 doctors that all agree are right.Thanks for all of the caring and support here. | | |
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