#22507 03-12-2007 02:10 PM | Joined: Mar 2006 Posts: 58 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Mar 2006 Posts: 58 | Darrell, you have helped so many along the way. Thank you.
Peace and comfort sent your way. Angela
Caregiver to husband David, non smoker. Dx 1/06 SCC Base of Tongue Stage IV, neck nodes involved. Surgery/Chemo/Rad. Treatment finished 5/06. Waiting. Recurrence in lung, Aug07. 6 months Cisplatin/Erbitux. Spots shrinking after 3 Cisplatin tx.
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#22508 03-13-2007 12:13 AM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Darrell - Just wanted you to know that I am here, too, and keeping you in my thoughts and prayers. Your courage is an amazing thing to me! I'm glad that the hospice is taking good care of you and that your family seem to be holding up well. I do hope that you have peace and comfort in the difficult days ahead, but I am still visualizing and praying for a miracle and will continue to do so.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#22509 03-13-2007 12:31 AM | Joined: Jan 2005 Posts: 156 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Jan 2005 Posts: 156 | prayers and hugs your way darrell. you are so brave and an inspiration to us all god bless you. regards ..maz | | |
#22510 03-13-2007 09:34 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2004 Posts: 1,116 | Darrell, I am thinking of you today and praying for you and your family....I hope you are doing okay, Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10 ---update passed away 8-27-11---
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#22511 03-13-2007 01:14 PM | Joined: Mar 2007 Posts: 13 Member | Member Joined: Mar 2007 Posts: 13 | Darrell,
I am new here and haven't been fortunate enough to get to know you, but your post touched my heart. I couldn't agree more that marijuana should be made readily available to cancer patients. I will write my congressman for sure. You are in my thoughts and I am keeping you and your family in my prayers.
God Bless, Lissy
Melissa CG to husband (billy.calcutt) (44), BOT SCC Stage IV, node involvement Dx 3/7/07. Cisplatin x 3/RAD x 30 TX over on 5/31/07!
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#22512 03-13-2007 03:51 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,219 | Darrell,
Please know that you are in my prayers and in my heart.
Your contributions to this forum have been a godsend to so many.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#22513 03-13-2007 04:12 PM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Mar 2007 Posts: 525 | HELLO. I'M NOT SURE IF THIS IS TO DARRELL OR JERRY. I AM A NEW PATIANT AND TRYING TO FIGURE THIS CHATROOM OR WHATEVER IT IS OUT. I LOGGED ON TODAY TO "INTRODUCE YOURSELF" AS PeteyB. someone named august replied...hello PeteyB and i do not know how to answer. please bear with me.i have tongue cancer and desperatly want to chat with someone. this is all new and very mind boggleing. some please help me understand this board so i can ask someone the hard questions i need answers to my name is Peter my e-mail is [email protected]
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method. ***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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#22514 03-13-2007 04:51 PM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Hi Petey - I think you are in two places. When you log on, and click on "Introduce Yourself" then you should click on there it says "NewComer" for all the messages that people have sent you. I'm so glad you found us because there are lots of people that can help you!
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#22515 03-14-2007 06:47 AM | Joined: May 2004 Posts: 218 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: May 2004 Posts: 218 | Darrell,
I must say I am very proud of you for sticking to your beliefs even in your hour of great sorrow.
I too am a believer in Medical MJ. It really, really helped me thru the treatment.
When I was first diagnosed a fellow HNC survivor from the Bay Area told me it helped him with appetite, nausea, pain. He said I could get it with a prescription in the form of candies, muffins, etc.
Living in IL made that difficult, but I still had a few friends that were stonies as we all do. Lets face it a lot of people smoke pot. They were able to obtain some for me.
Well, I pulled a few recipes off the internet and made a Huge batch of brownies. I gotta say, my treatment changed drastically from that point forward. I eased back 80-90% on the pain meds, I still had diarrhea but the vomiting stopped, I mean stopped, my appetite came back, even with a severely damaged throat I was able to eat.
As I stated it helped me a lot. I am not telling others to do that, just how it helped me.
Also, since I don
SCC 1.6cm Right Tonsil 10/3/03, 1 Node 3cm, T1N2AM0, Tonsil Removed, Selective Neck Disection, 4 Wks Induction Chemo (Taxol,Cisplatin), 8 Weeks Chemo/Radiation (5FU,Hydroxyurea,Iressa), IMRT x 40, Treatment Complete 2/13/04. 41 Years Old At Diagnosis
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#22516 03-14-2007 04:01 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | Just want you to know, I'm with you and your family in spirit today. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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