#22391 03-01-2007 01:05 PM | Joined: Mar 2002 Posts: 4,918 Likes: 65 OCF Founder Patient Advocate (old timer, 2000 posts) |  OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 65 | These same guidelines also reside in the treatment section of the OCF site at this link http://www.oralcancerfoundation.org/treatment/guidelines.htm
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#22392 03-05-2007 07:13 AM | Joined: Feb 2007 Posts: 8 Member | | OP Member
Joined: Feb 2007 Posts: 8 | Hello again.
T thought I would give everyone an up date. Today he had a pet scan (we've not had any results yet). We met with the team last Friday and they were all very positive. They didn't try to gloss things over and told him what to expect. They examined him again and took more photos. They also said that the tumours in his neck were larger than the primary tumour, which tells them that the cancer is aggressive. He will undergo 33 radiation treatments and five chemo. As far as the cyst in his sinus cavity goes, they are sure it is benign. He is due to start treatment on march 21st. He also saw a dentist who removed his rear molar. He is extremely tired which I didn't expect, until the treatment started, but I assume it is partly shock because of his condition. Thanks everyone for your help.
When you get a diagnosis like this, you feel that you are the only one. Since reading most of the messages on this site I don't feel so alone. I pray for everyone that is having to deal with this horrible desease including the caregivers and the patients.
Irene
irene
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#22393 03-05-2007 04:14 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Dear Irene, You won't ever be alone if you stick with us, because we all know what it takes to fight this battle, be it patient or caregiver. The strong,courageous people here will hold your hand as long as you need us to. I hope you are starting your "plan of action" as a caregiver. Please research the "How to get through it" board, as it will give you lots of good information as you start this journey.Stay strong- Amy in the Ozarks
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#22394 03-09-2007 10:52 AM | Joined: Feb 2007 Posts: 8 Member | | OP Member
Joined: Feb 2007 Posts: 8 | Hello again
My h's pet scan came back no other tumours were found. They are giving him Fractionated Sterotactic radiotherapy 33 times. Has any one undergone this type of treatment? I will be glad when September comes!
Irene
irene
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#22395 03-09-2007 03:46 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Irene, the pet results sound like really good news! Can't help you with the rad part, John had IMRT. Good luck going forward.Amy in the OZ.
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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