#21485 02-03-2007 09:14 PM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Apr 2006 Posts: 794 | Dear Bhavna,
What a beautiful testimony to your love for each other....and to hope.....and to the belief in the power of prayer. You can be assured of my prayers for Oudom. I do believe in miracles.
I read a series of books a few years ago...the Mitford series, and in those books, the husband and wife spoke often of "the prayer that never fails." It is this: "Thy will be done."
I will pray that it is God's will to heal Oudom...and that He give you both strength to deal with whatever lies ahead for you.
Pray hard...never lose hope....and love each other more every day.
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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#21486 02-04-2007 03:25 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Bhavna,
I often think what my reaction would be if I were told that my cancer had returned and there was nothing they could do. I know that I would find some doc out there that would try something "out of the box". I wouldn't give up until I had turned over every stone. I hear what they say about no more rad but if I'm facing sure death not treating cancer, please tell me what have I got to loose testing their science? I hope to God I don't have to deal with that scenario but if I do I'm not going out without a major fight and I know my wife would be right by my side just like you.
We all pray that you both continue to have the strenght you have shown to continue to fight this ugly attack on his body.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#21487 02-04-2007 07:12 AM | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Sep 2006 Posts: 493 | Bhavna,
I will continue to pray for you both. Thanks for sharing your thoughts with us. I too believe in the power of prayer and can testify to that power many times in my life. I pray that you will stay strong remain hopeful when other tell you to give up.
Tim
Tim Stoj 60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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#21488 02-04-2007 08:50 AM | Joined: Jul 2006 Posts: 388 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jul 2006 Posts: 388 | Bhavna and Oudom - Let me add our best wishes and most fervent prayers for Oudom. We are not giving up on him either, and a prayer for you both has already been sent special delivery. Blessings and Peace... JaneP
Husband: 3 SCC gum and cheek cancers 2002, 2005, 2006: surgery only. Scans clear after removal of small, well differentiated, non-invasive cancers. No radiation. 4th SCC lip diagnosed 4/13/07 - in situ, removed in biopsy. More lip removed 2/8/08 - dysplasia. 2 Biopsies 3/17/09 no cancer (lichenoids)
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#21489 02-04-2007 09:57 AM | Joined: Oct 2006 Posts: 160 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Oct 2006 Posts: 160 | I also deeply belief in the power of prayer. Everyone on this board is in my prayers each day. A special prayer will definetly be said for your fiance and also you. You sound like you have such a good spirit in you. I pray that you keep that, and the many miracles we read about happen to your fiance. I never would of gotten this far without the power of prayer. May peace and strength be with you. Take care.
Dx3/20/06 SCC,BOT,1N Tx:5cycles Carbo/Taxol, Rad:35x, brachytherapy:6x, completed 7/24/06
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#21490 02-12-2007 04:17 PM | Joined: Oct 2016 Posts: 284 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Oct 2016 Posts: 284 | Sending my prayers your way Bhavna & Oudom. You will both be in my prayers.
Hugs, Dani
Originally joined OCF on 12/12/03 as DaniO or Danijams Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04 surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
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#21491 02-23-2007 06:45 AM | Joined: Nov 2006 Posts: 19 Member | OP Member Joined: Nov 2006 Posts: 19 | Hello everyone, hope you are doing well. Thank you all for your kind words and prayers, they have been much appreciated.
As of now, my fiance has gone back for a follow-up appointment with his radiologist, who has informed him that the tumors in his neck area are all connected, and soon they will grow larger and soon brething will become difficult to the point where he will completely stop breathing. Well, it's nothing new, we keep coming back to hear them remind us of how they can't do anything. I accept that they are being honest, but I still have to beleive that there is something out there that can help, I'm not giving up.
I read a lot about natural medicine, and I read about something called "Natural Defense Zeolite", has anyone encountered this or had experience or knowledge with this? Apprently it helps with detoxifying the body and helps with clearing the cancer cells - I'm not sure if that is true, but I bought a box and we are going to find out more information through his natruopathic doctor. Got to do something right - can't just sit around and wait, because soon he will have his CT and MRI done and they will tell us how long is left, and for what they are saying - it is a matter of months.
So if anyone has information, I have been doing my research online, but I would like to hear it from a direct source, anything would be appreicated. Thank you all, and God bless you. | | |
#21492 02-23-2007 07:50 PM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Apr 2006 Posts: 794 | Dear Bhavna, Oudom and you certainly have a difficult time ahead. I will keep you BOTH in my prayers by name. He is lucky to have you.
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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#21493 02-24-2007 06:15 AM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Dear Bhavna - My thoughts and prayers are with you and Oudom in the difficult journey that you both have. You have shown such tremendous courage and love for Oudom - my hope is that you both continue to have the strength and peace you need in the days ahead and that you will feel God's love surrounding you and holding you in His care.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#21494 02-24-2007 12:51 PM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Bhavna,
I agree with you 100%. I would try anything if I were left without medical help. I mean what have you got to loose? I had many friends that tried to get me to try all sorts of "home remedies". I chose to put my full faith in my medical team but if they were giving up, I would definitely consider alternative Txs. Lets hope you find one that helps him.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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