#20619 07-24-2006 11:04 AM | Joined: Jun 2005 Posts: 72 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Jun 2005 Posts: 72 | Hi Wayne - You are heading in the right direction. You've had the surgery, now you have a plan for the radiation. It is not easy - but you've got a lot of support right here. Please pass along this website to your family & friends. It helps. As my husband's caregiver, I found so much advice, hope and friendship during some very dark hours right here on this website. The road you are on is difficult - but you CAN make it. Depression has been a critical issue for my husband. He was so very relucant to admit he needed help with an 'emotional problem' - but I have to tell you that the anti-depressants saved his life. Seriously. It has been over a year since his diagnosis and we are 9 months out from treatment. Today he is doing very well and he is the very first to tell anyone to get help for the 'emotional problems'.
Visit here often - when ever you need a sounding board, or just need to complain. We are on this on this journey together and all are willing to help light up your path.
Hang in there - one day at a time. Carol
Carol R - caregiver to hubby Ken. Stage 4, SCC, BOT. 6/05 dx, 9/25/05 last tx, 5/06 stroke. Four years cancer free! Still taking things 1 day at a time.
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#20620 07-26-2006 08:13 AM | Joined: Apr 2006 Posts: 36 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Apr 2006 Posts: 36 | Hi Wayne, I had my surgery at the beginning of last December. Mine was similar to yours, though no bone graft. Physically I recovered much like you. Way ahead of Dr's expectations. I refused to be bed riden, or even dependant on anyone for any length of time. Just me being a stubborn old redneck.
I did have alot of issues as far as my emotions. I was never one to let mine be known. And I hid them quite well.I was aware that people now looked at me differently. I even noticed my kids stares from time to time. But I got past my vanity, which I never thought myself to be vain. One cannot worry what others think. I have a very noticable scar and a bulge when the flap is. I have not decided yet, but am leaning towards not doing platic surgery to remove excess. Feeling is slowing returning to parts of my cheek and I just don't know if I need the surgery. Plus, I have a program starting up that takes me to schools, churches, outdoor events and more to talk to people about dipping. he image of me they see makes a more profound impact. I never had to have radiation as all 37 of my nodes were clean. So I cannot begin to tell you anything on that front. Hang out here and chat with people. I have neglected to do that, and I have missed out. But always keep a positive outlook on this. I wish you all the best. God bless, Curtis
The Outdoor Texan
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#20621 08-03-2006 01:06 AM | Joined: Aug 2006 Posts: 5 Member | Member Joined: Aug 2006 Posts: 5 | Wayne, I too had the mandible resected and replaced with the fibula age 44. Honestly, the leg was the most painful part of the procedure, which lasted like you 17 hours. I had the procedure 5 years ago, and today can eat anything. Except for the dry mouth, I do not have major problems. I coach a boys U14 soccer team, and practice with them twice a week. I was back to work about 6 months after surgery, or about 2 1/2 months after chemo/radiation treatments.
You have had a very difficult time and you can flourish down the road. Nutrition is key. I made it through with enriched milk shakes and cocoa wheats cereal.
I was emotionally wrecked after surgery, as my speech was very much affected. In my profession I made numerous speeches and presentations, especially at national and international seminars and professional meetings. I thought I would never be able to return, but with the encouragement of my doctors I am back to doing everything I used to do. I am not the same, just a different normal now. That was a realization I had to accept. You will forever be changed, but you are the same person. Best of luck to you. I will watch this posting. | | |
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