Hello! I’m 3 years post op, radiation and chemo for squamous cell carcinoma stage 4. I’m still experiencing swelling on my left side of cheek, jaw and tongue swelling. The tongue is swollen and causing scalloped tongue against my teeth and causing an indented tongue pain that no doctor or dentist cannot seem to help with. Any suggestions?

Hi Thelma,

Welcome to OCF and thank you for reaching out. I am sorry to hear of your difficulties in recovery. I had surgery (half tongue replaced) and radiation in 2020. It took many months for my tongue swelling to come down but not three years. It will never be normal again but what you are describing does sound like you should keep finding doctors to look at it.

Can you find another medical team to get a second opinion? Are you near MD Anderson? They are one of the most highly respected cancer centers.

Please keep us updated, stay safe, and keep the faith,
Nels