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#202162 01-15-2025 02:49 AM
Joined: Jan 2025
Posts: 11
dsd
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Joined: Jan 2025
Posts: 11
Got biopsy result around year ago - leukoplakia without dysplasia, in meantime white patch around 1 cm long came back and formed like big lesion without pain while rest of the gums underneath is eroding, is that beginning stage of cancer? Doctor thinks that it looks good he said come back in one year , but I am scared..anybody here had PVL leukoplakia?

Joined: Dec 2010
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,264
Likes: 5
Sorry - I would go for a second opinion elsewhere. If you’re having issues deal with it. Not getting an answer - see someone else. Having a second could catch something your dr missed - or allay any concerns.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
1 member likes this: dsd
Joined: Jan 2025
Posts: 11
dsd
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Joined: Jan 2025
Posts: 11
I went to head and neck surgeon at local hospital for 2nd opinion and he completely dissmissed it as not issue, he even asked me "Who told you that you have Leukoplakia?!" Well it was diagnosed by professor at the university dental school plus 2 biopsies on two different sites. He also dismissed it as not an issue and told me come back in one year. Obviously Dr.Google influenced patients makes doctors irritated..

I still believe it is PVL since all signs of PVL are there albeit I am not woman

Last edited by dsd; 01-17-2025 07:37 AM.
Joined: Jan 2025
Posts: 11
dsd
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Joined: Jan 2025
Posts: 11
Went to MRI head scan - just to be sure. Nothing malignant there for moment.

Joined: Nov 2019
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PAD
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Joined: Nov 2019
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I have PVL. I’ve had several biopsies. Mild dysplasia. Started out being observed every 3 months, biopsy once a year. I’m now observed every 6 months. The best person to see in my opinion is an Oral Pathologist. I’m a non smoker. I’m going on 5 years since diagnosis.


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