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| Joined: Jan 2025 Posts: 4 Member | OP Member Joined: Jan 2025 Posts: 4 | Got biopsy result around year ago - leukoplakia without dysplasia, in meantime white patch around 1 cm long came back and formed like big lesion without pain while rest of the gums underneath is eroding, is that beginning stage of cancer? Doctor thinks that it looks good he said come back in one year , but I am scared..anybody here had PVL leukoplakia? | | | | Joined: Dec 2010 Posts: 5,264 Likes: 4 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 4 | Sorry - I would go for a second opinion elsewhere. If you’re having issues deal with it. Not getting an answer - see someone else. Having a second could catch something your dr missed - or allay any concerns.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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dsd | | | | Joined: Jan 2025 Posts: 4 Member | OP Member Joined: Jan 2025 Posts: 4 | I went to head and neck surgeon at local hospital for 2nd opinion and he completely dissmissed it as not issue, he even asked me "Who told you that you have Leukoplakia?!" Well it was diagnosed by professor at the university dental school plus 2 biopsies on two different sites. He also dismissed it as not an issue and told me come back in one year. Obviously Dr.Google influenced patients makes doctors irritated..
I still believe it is PVL since all signs of PVL are there albeit I am not woman
Last edited by dsd; 10 hours ago.
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