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#202160 01-05-2025 02:25 PM
Joined: Mar 2005
Posts: 10
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Joined: Mar 2005
Posts: 10
I am scheduled for surgery to replace mandible due to ORN Jan. 2025. I am wondering if anyone has gone through this surgery and would like to share your experience. I’m scared to death! Mostly because they’re operating on radiated tissue and I understand how difficult that can be. I, of course, am looking for positive outcome but feel very unsure I will be able to achieve that given the amount of RAD I had 25 years ago. Anybody out there who can calm my nerves?


Donna
Stage IV SSC tongue
hemmiglossectomy/radical neck/free flap
peg tube
cisplatin/5fu
Radiation
Permanent J-tube 2018
nop 2018
ORN
Donnamae #202164 01-15-2025 06:42 PM
Joined: Dec 2010
Posts: 5,264
Likes: 4
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,264
Likes: 4
I’m actually having it soon too.. I have ORN on my right jaw.near the back, and I’ve had a new primary pop up on my tonsil... same side. My surgeon said he’s not going to go in and operate with out addressing the ORN so… I’m having the cancer removed and the jaw replaced! I’ve been trying to find pictures on the internet but… no luck. Best of luck!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan

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