| | Joined: May 2007 Posts: 622 Likes: 1 "Above & Beyond" Member (500+ posts) | OP  "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 622 Likes: 1 | Greetings everyone. It's been a while since I've been on the board, but I just want to check back in, update my profile, and catch up.
I’m now 18 years out from my original diagnosis of tongue cancer, so for those of you new folks, keep your chin up and your eyes on the finish line!
Also, I am now a two-timer. Just finished 34 IMRT treatments for prostate cancer. All I can say is what a difference 18 years has made in technology. No skin burning and very little pain. I had several gentlemen in the treatment waiting room with me that were current oral cancer patients and I was also amazed at their symptoms as well. Yes, some skin breakdown and pain, but nothing like what I remember from when they “threw the book” at me, and most folks here at that time.
Haven’t had time to go through the posts yet, but I did see a few “old timers”.
I’ll check back later.
Kevin
18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking | | 1 member likes this:
ChrisCQ | | | | | Joined: Aug 2020 Posts: 170 Likes: 50 Assistant Administrator Senior Member (100+ posts) |  Assistant Administrator Senior Member (100+ posts)
Joined: Aug 2020 Posts: 170 Likes: 50 | Kevin
Wonderful to hear from you. Congrats on 18+ years and getting through a second round of cancer treatments. Your story is inspiring! Stay safe and keep the faith.
Nels
OC thriver, Tongue Stage IV, diag 3/12/20, surg 4/1/20, RT compltd 7/8/20
| | 1 member likes this:
ChrisCQ | | | | | Joined: May 2013 Posts: 188 Likes: 4 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: May 2013 Posts: 188 Likes: 4 |
Age 55 HPV 16+ SCC, BOT 050613 Stage IV
great team at OSU
Tx 6 weeks of rad started June 3
8 weeks of chemo started May 28
RTOG Phase III trial Cetuximab group.
Treatment completed 7/16/2013
PET Scan completed 10/08/13
Results discussed 10/11/13
NED - Free but am I
Next part of the journey?
1year PET 10/24/14 NED
Good reports now 10 years out.
| | | | | Joined: Jun 2021 Posts: 42 Likes: 8 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jun 2021 Posts: 42 Likes: 8 | Welcome back.. I too have been absent for a while. BTW, does anyone know what happened to Brian Hill and Christine???
I am 15 years out. I did have to start using a feeding tube a few years back.. And my voice sucks!! other than that....I am great!!
steve
72 yo
SCC 2009
Radiation/Chemo, clear 2010
Active triathlete
NPO and bad voice after 12 years
But doing great
| | 1 member likes this:
ChrisCQ | | | | | Joined: May 2013 Posts: 188 Likes: 4 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: May 2013 Posts: 188 Likes: 4 | Wondering that myself.Christine was a key part of my journey and Brian’s relationship with the OSU put me in touch with this group.
Age 55 HPV 16+ SCC, BOT 050613 Stage IV
great team at OSU
Tx 6 weeks of rad started June 3
8 weeks of chemo started May 28
RTOG Phase III trial Cetuximab group.
Treatment completed 7/16/2013
PET Scan completed 10/08/13
Results discussed 10/11/13
NED - Free but am I
Next part of the journey?
1year PET 10/24/14 NED
Good reports now 10 years out.
| | 1 member likes this:
ChrisCQ | | | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 | Congrats, Kevin. I also don't visit here much anymore since I'm just recently 15 years out. And like you I have prostate cancer, but mine is still thankfully Gleason 3+3, so no treatment yet.
And yeah - where are Christine and Brian?
David
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
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