| Joined: Jun 2005 Posts: 349 Likes: 2 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Jun 2005 Posts: 349 Likes: 2 | I’ve hit a wall. I’m in Southern California and need an extremely talented top in their field oral oncology surgeon for a complex set of extractions and much more. Does anyone know someone like this anywhere? I’ll travel worldwide for the best. Thank you!!
Michael | 53 | SCC | Right Tonsil | Dx'd: 06-10-05 | STAGE IV, T3N2bM0 | 3 Nodes R Side | MRND & Tonsillectomy 06/29/05 Dr Fee/Stanford | 8 wks Rad/Chemo startd August 15th @ MSKCC, NY | Tx Ended: 09-27-05 | Cancer free at 16+ Yrs | After-Effects of Tx: Thyroid function is 0, ok salivary function, tinnitus, some scars, neck/face asymmetry, gastric reflux. 2017 dysphagia, L Carotid stent / 2019, R Carotid occluded not eligible for stent.2022 dental issues, possible ORN, memory/recall challenges.
| | | | Joined: Mar 2002 Posts: 4,918 Likes: 64 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 64 | I can't name someone specifically to send you to. But as you well know, its important to see someone that understands the issues that you might have because of your treatments. While traveling to see someone talented seems a good idea, I'd like to have someone that in the first month after the surgery could easily see me to follow up or deal with anything that wasn't behaving as expected. That would be tough if you traveled out of state to do this. There's a lot of good oral surgeons in SoCal, so you likely don't need to go far to find someone that has the right background, and this isn't complicated to do. But it could get complicated if your body decides not to heal up properly. Picking an oral surgeon at UCLA that is tied to the cancer center might be a thought.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | | | Joined: Jun 2005 Posts: 349 Likes: 2 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Jun 2005 Posts: 349 Likes: 2 | Thanks. Still trying to get in to see someone but my dentist is worried about an area in the root of #15 that’a showing a radio luminosity with a possible lesion she’s saying is suspicious for cancer, and finally is suggesting I seek a biopsy after chasing this for 3 months. So. Yeah. Now worried about cancer and given the swollen node in my jaw for 3+ months despite 4 courses of antibiotics— I am concerned for something sinister.
As always thank you for being such an amazing leader Brian and thank you to everyone on this forum.
Michael | 53 | SCC | Right Tonsil | Dx'd: 06-10-05 | STAGE IV, T3N2bM0 | 3 Nodes R Side | MRND & Tonsillectomy 06/29/05 Dr Fee/Stanford | 8 wks Rad/Chemo startd August 15th @ MSKCC, NY | Tx Ended: 09-27-05 | Cancer free at 16+ Yrs | After-Effects of Tx: Thyroid function is 0, ok salivary function, tinnitus, some scars, neck/face asymmetry, gastric reflux. 2017 dysphagia, L Carotid stent / 2019, R Carotid occluded not eligible for stent.2022 dental issues, possible ORN, memory/recall challenges.
| | | | Joined: Jun 2005 Posts: 349 Likes: 2 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Jun 2005 Posts: 349 Likes: 2 | The node(s?) in my neck and under my jaw are getting more tender and bothersome.
I still have pain and discomfort in my teeth on the L side which varies between a 0 to a 3.5 but is usually around a 1.
I think I have a sore on my tongue (like a recurring canker sore) but I think it comes and goes and maybe I’m biting it every once in a while due to changes in my mouth.
The node is worrisome and it seems to be tender and swollen for almost 3-4 months.
I’m starting to melt down.
Trying to get in for a biopsy but soonest anywhere is serval days away.
I don’t feel well at all.
Michael | 53 | SCC | Right Tonsil | Dx'd: 06-10-05 | STAGE IV, T3N2bM0 | 3 Nodes R Side | MRND & Tonsillectomy 06/29/05 Dr Fee/Stanford | 8 wks Rad/Chemo startd August 15th @ MSKCC, NY | Tx Ended: 09-27-05 | Cancer free at 16+ Yrs | After-Effects of Tx: Thyroid function is 0, ok salivary function, tinnitus, some scars, neck/face asymmetry, gastric reflux. 2017 dysphagia, L Carotid stent / 2019, R Carotid occluded not eligible for stent.2022 dental issues, possible ORN, memory/recall challenges.
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