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| | Joined: Oct 2019 Posts: 4 Member | | Member Joined: Oct 2019 Posts: 4 | My mom got the news on Monday that she has SSC of the tongue . We are in the process now of staging and seeing doctors. She is leaning against surgery . Any thoughts would be helpful. Also she is drooling a lot. Has anyone used anything to assist with controlling this ssue? Thanks. | | | | | Joined: Mar 2018 Posts: 86 Likes: 2 Supporting Member (50+ posts) | | Supporting Member (50+ posts) Joined: Mar 2018 Posts: 86 Likes: 2 | Sorry to hear of your mom's diagnosis. I would give her some time to process the news. Its a lot to take in, as I am sure you know. My dad was initially against a lot of treatments but eventually came around. After my dad had his second surgery, he drooled a lot, too. His medical oncologist said there are pills one can take to dry up saliva, which stroke patients use sometimes. They also talked about filler injections to plump up his lip, because he couldn't feel it or move it right after surgery and saliva and food would just dribble out all day. In the hospital, he held gauze between his lips to catch it, and that seemed to help. The nurses also put Vaseline on his chin to protect his skin.
Dad was diagnosed 2/28/18 w Stage 4, N0 Verrucous carcinoma (VC) an uncommon variant of SSC Mandibulectomy and free-flap reconstruction 5/30/18 Diagnosis changed to SSC. Began treatment of 30 rads and 5 Cisplatin Cycles on 7/18/18 Decided not to do any more Cisplatin after the first one. Finished treatment on 8/31/18. 3.19 Abscess & Recurrence wide mouth resection 4.16.19 Scapular Flap Reconstruction surgery 9.6.19 Clear CT! 8.6.20 Clear CT!
| | | | | Joined: Oct 2019 Posts: 4 Member | | Member Joined: Oct 2019 Posts: 4 | Thanks so much. I keep telling my mom dad this is a marathon, not a sprint. We will have all our treatment answers at the end of October as we see medical oncology then. | | |
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