Post Surgery Day 9; I was discharged.

Sorry I've been really quiet but I've been really busy in the hospital with speech therapy and also trying to move about now. Oh and I had a day with a high temperature.

The hard work was worth it. The trackie came out and I was taken out of my lovely private room and moved to a head and neck ward. I then worked hard at the ice chip technique and was declared well enough to go home. On day 9.

So I am in my own home. I am with my husband. We have both been very emotional with each other.

I've got to continue practise with ice chips and I have to practise with small sips of water too.

I feel very battered and bruised. I feel very vulnerable and emotional, but I am so glad to be home.

hugs to you Dizzy, you just went through a war. Take it easy and just keep plugging forward. We are fighting for you!

Hi Connie,

Thank you so much! I will keep you all updated with my progress.

Quick question.. I'm over salivating. It's foamy and I can't seem to be able to clear it unless I wipe it out of my mouth. Has anyone experienced this?

It could be from swelling in oral cavity....combined with no movement from tongue to clear away the secretions.

Crystal

Ahhhh! That makes sense.

My husband has ordered me a baby mucus removal machine. One that can suck it all out nicely. Hopefully. With my luck I won't be able to get to the back of my throat.

Glad your back home Dizz. The inflammation can maybe be causing over production of the salivary glands. Maybe a good thing. Better than dry mouth. Mucous in the back of the throat can be working it’s way up from the trachea from it being irritated and trying to heal. The more liquids your able to get down the thinner it will keep the secretions to be able to get them up and out. Your awesome Dizz. You’ll be my inspiration down the road if I end up needing more surgery. Hugs.

Ah that all makes sense, thank you Mokie. I'll keep pushing with my swallow practise so that the secrections and mucus are thinner. I definately rrecommend a baby nasal mucus remover tool for removing excess mucuss, instead of the tonne of tissues I've been using.

Thank you for your kind words.

Update:

The speech therapist is impressed with my speech and prounciation. Plus my swallow has come on in leaps and bounds. I no longer hydrate through my G tube, I'm drinking from a glass/cup. I've learnt that drinking from a bottle isn't good for me right now, so when I leave the house for appointments I'll carry a small cup with me or use a flask with a wide mouth.

I'm also allowed to try thicker liquids such as custard, yoghurt, ice cream, mash potato and gravy etc. I feel a bit nervous about it, but also determined. My husband took me grocery shopping for some bits to tempt me. Lets see what I can do.

I met with a rep from the company who send me the shakes for my G tube and I raised the concern that I'm ingesting around 95g sugar every day with their product. I don't feel comfortable consuming that much as I'm concious of becomming diabetic. I've asked if I can speak to the dietician so that I can make my own blended meals.
If she says no, I will rebel and find a way

I was fitted for my mask for radiotherapy. Good grief that made me anxious. I have been given all dates and times for my sessions. Tomorrow I have a CT scan wearing the mask. I'm a bit nervous but I feel I'll be OK once I'm there.

Today I'm feeling really positive and focussed. The fatigue still kicks my butt, but I'm accepting that my body needs to rest up as and when it wants to.

You ARE a rebel Dizz, but obviously it has served you well. So happy to hear how well your progressing. Sounds like your appetite is good too. High five!!! ❤️

High five back to you Mokie!

How are you doing?