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Leaking w G-tube #198523
06-17-2019 08:03 PM
06-17-2019 08:03 PM
Joined: Apr 2019
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Heather shu Offline OP
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Heather shu  Offline OP
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Joined: Apr 2019
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My husband’s tube has pretty bad leaking, we change gauze like twice for each feed, is that normal? Granulation kept forming around the site, his doc treated it was silver nitrate, and removal extra skin, it kept coming back.

His medical oncologist placed g tube for him, but should a GI doc do that?


Heather

Wife of Steve, oral cavity and lip scc, also in 4 lymph nodes
PT4a, pN2b
4/19/2019 surgery removal of left mandible and reconstruction of left jaw
5/19/2019 procedure wash out abscess on right chin
5/31/2019 med port placement
6/10/2019 procedure wash out abscess on left chin, biopsy done on tissue under tongue, scc
6/20/2019 surgery to remove scc under tongue
6/27/2019 abscess found on his chin again, on Iv antibiotics
Re: Leaking w G-tube [Re: Heather shu] #198526
06-18-2019 02:52 AM
06-18-2019 02:52 AM
Joined: Jun 2007
Posts: 10,318
PA
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ChristineB Offline

Administrator, Director of Patient Support Services
ChristineB  Offline

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Joined: Jun 2007
Posts: 10,318
PA
Feeding tubes can and will need to be replaced for all sorts of reasons. Leaking that much is NOT normal! The drain sponge should be changed at least once a day, more if theres a problem like granulation of leaking. Patients that leave a wet drain sponge in place can end up with an infection. Granulation can hurt like heck!!! Call the gastro doc who did the original placement and ask for an office visit/consult wi9th them. Your husband could need to have the current tube exchanged for a new one. Unfortunately, feeding tubes dont always have the best support after they're placed. Patients who have a feeding tube should NOT be lifting anything heavy, under 290 pounds is fine but nothing over! I have silver sulfadine cream that I use around the tube site covered with a double drain sponge to help avoid granulation. If your husband doesnt already have this ask the doc for a prescription. It only takes a very little amount (so you can see thru the thin to be effective. Use a qtip to spread a thin coating of cream around the site,

Best wishes!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Re: Leaking w G-tube [Re: ChristineB] #198527
06-18-2019 06:22 AM
06-18-2019 06:22 AM
Joined: Oct 2012
Posts: 1,089
Toronto, Canada
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gmcraft Offline

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gmcraft  Offline

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Joined: Oct 2012
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Toronto, Canada
My husband had a leaking tube as well as granulation at one point in his treatment. The interventional radiologist looked at it and said he could replace it but it was complicated. It involved putting in a tube at a nearby spot, etc, etc. He sent us to a wound specialist who suggested doing what ChristineB said in her post above. The visiting nurse told us never try to clean the insertion point by rubbing it too hard. We should just dab it gently with some gauze, then put the cream on it and cover it with the drain sponge. Hope this helps.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
Re: Leaking w G-tube [Re: gmcraft] #198528
06-18-2019 07:01 AM
06-18-2019 07:01 AM
Joined: Aug 2018
Posts: 222
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ConnieT Online
Gold Member (200+ posts)
ConnieT  Online
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Posts: 222
the feeding tube was the worst part of my husband's treatment process. they finally replaced it half way through and then after it was removed, they had to do surgery to suture the hole as it would not heal. He put up with the issues way too long.


Spouse of 56 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
Re: Leaking w G-tube [Re: ConnieT] #198557
06-19-2019 08:18 PM
06-19-2019 08:18 PM
Joined: Apr 2019
Posts: 8
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Heather shu Offline OP
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Heather shu  Offline OP
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Joined: Apr 2019
Posts: 8
Thanks all for replies.

Steve is having surgery again tomorrow, the 4th time in hospital in ~2 months, it is really hard for both of us and our 16 yo daughter.
I spoke to his oncology surgeon who placed his tube for other solution, hopefully he remove tumor and fix his gtube too.


Heather

Wife of Steve, oral cavity and lip scc, also in 4 lymph nodes
PT4a, pN2b
4/19/2019 surgery removal of left mandible and reconstruction of left jaw
5/19/2019 procedure wash out abscess on right chin
5/31/2019 med port placement
6/10/2019 procedure wash out abscess on left chin, biopsy done on tissue under tongue, scc
6/20/2019 surgery to remove scc under tongue
6/27/2019 abscess found on his chin again, on Iv antibiotics
Re: Leaking w G-tube [Re: Heather shu] #198558
06-20-2019 05:39 AM
06-20-2019 05:39 AM
Joined: Jul 2012
Posts: 3,196
NYC
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PaulB Offline
Patient Advocate (old timer, 2000 posts)
PaulB  Offline
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Joined: Jul 2012
Posts: 3,196
NYC
Heather,

A GI placed both of my tubes. The first one I had “yanked” out by a GI doctor since I wasn’t using it anymore, but I needed one a month later due to a recurrence, and that was put in by a different GI doctor at the site in the stomach that healed over. I did have trouble through the years towards the end of the 6th year when the tube actually broke so I clanked it off. This last tube couldn’t be yanked out, but had to be taken out though my esphogus under sedation. Under sedation I was awakened with the team pulling the tube out of my throat when I was awakened, and staff holding me down, and I think I had more sedation to knock me out.

After, the hole was still leaking for a few months, and not healing, so I needed surgery to close it by suture and burning of off. I haven’t had a problem since

It helped me through the years when I couldn’t or had difficulty eating, and was like a security blanket. I do feel better now without it.

Good luck with the next tube placement.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Re: Leaking w G-tube [Re: PaulB] #198562
06-21-2019 05:16 AM
06-21-2019 05:16 AM
Joined: Apr 2019
Posts: 8
H
Heather shu Offline OP
Member
Heather shu  Offline OP
Member
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Joined: Apr 2019
Posts: 8
Steve’s surgery went well yesterday, his oncologist replaced the gtube w a Gj tube, hopefully this won’t give as much trouble. His oncologist said he has only seen 2-3 cases of great problem like his, he is probably in his 70s.

Btw, his surgery lasted for 6.5hrs yesterday, they removed tissue from bottom soft palate, reconstruct the area using skin from his arm.

Thanks again, everyone.


Heather

Wife of Steve, oral cavity and lip scc, also in 4 lymph nodes
PT4a, pN2b
4/19/2019 surgery removal of left mandible and reconstruction of left jaw
5/19/2019 procedure wash out abscess on right chin
5/31/2019 med port placement
6/10/2019 procedure wash out abscess on left chin, biopsy done on tissue under tongue, scc
6/20/2019 surgery to remove scc under tongue
6/27/2019 abscess found on his chin again, on Iv antibiotics

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