| Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) | Assistant Admin Patient Advocate (1000+ posts) Joined: Oct 2012 Posts: 1,275 Likes: 7 | Low neutrophils are a problem. My husband was in a Phase 1 trial for immunotherapy and they wouldn’t give him the meds if his neutrophil count was low. When it was borderline, the nurse used to tell my husband to walk up and down stairs for five minutes or so, it seemed this boosted the counts. I’m not saying you should try this, but we used to call them the “pesky Phils.” Chemo really did a number on my husband with the pesky Phil’s. He was for a whole week unable to start his deep-veined thrombosis injection (another side effect of his cancer) waiting for his white blood cell count to go up.
After the immunotherapy trial failed, my husband was in a second trial, for Selinexor. After that he was placed on another from of oral chemo. He would have lived a bit longer if aspiration pneumonia did not get him. It’s a tough road to walk but it did buy him time.
Gloria She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016. | | | | Joined: May 2019 Posts: 6 Member | OP Member Joined: May 2019 Posts: 6 | Hello,
Thanks for the valuable info. We have a 1 story house, no stairs to climb. If I want to walk in the street, can you guess how many minutes of walking I should do to be about equal to 5 minutes of climbing stairs? | | | | Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) | Assistant Admin Patient Advocate (1000+ posts) Joined: Oct 2012 Posts: 1,275 Likes: 7 | I’m afraid I can’t tell. Maybe if you have a Fitbit or an exercise app on your watch/phone, you can do the comparison. I really have no clue. Sorry.
Gloria She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016. | | | | Joined: Jun 2013 Posts: 346 Likes: 3 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jun 2013 Posts: 346 Likes: 3 | Do you have a Wii Fit or even one of those step-stool exercise things you can go up and down on to replicate stair climbing? Might be easier to exercise in the home than having to go outside if you aren't feeling well, depending on the weather in your area on any given day.
There are probably exercise calculators online that do calorie comparisons between exercises ... you aren't worried about the calories, of course, but if they say five minutes of jogging equals ten minutes of stairs, or something like that, at least it would give you some ideas to work with.
Surgery 5/31/13 Tongue lesion, right side SCC, HPV+, poorly differentiated T1N0 based on biopsy and scan Selective neck dissection 8/27/13, clear nodes 12/2/13 follow-up with concerns 12/3/13 biopsy, surgery, cancer returned 1/8/14 Port installed PEG installed Chemo and rads 2/14/14 halfway through carboplatin/taxotere and rads March '14, Tx done, port out w/ complications, PEG out in June 2017: probable trigeminal neuralgia Fall 2017: HBOT Jan 18: oral surgery
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