#19603 02-01-2006 10:00 AM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | OP "Above & Beyond" Member (300+ posts) Joined: Mar 2004 Posts: 417 | Many thanks to all of you...It is an up hill battle..Being a VA patient I am at the mercy of the government. But the upside is they get all the newest and best drugs, etc.I feel confident that all will be well, but I ain't lookin forward to this surgical thang...
Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#19604 02-01-2006 03:54 PM | Joined: Jan 2006 Posts: 16 Member | Member Joined: Jan 2006 Posts: 16 | Well, looks like this is the week for the information....Dad too.... Surgery and radiation...They put him in the hospital 2 weeks ago due to danger of airway closure. Had a trach put in, PEG tube, and a port after his first chemo treatment. Today, we were told "he is going to die from this". Can we get SOME good news... Darrel, Frances, Amy....Everyone You're in our hearts too....
P.Silveira *************** Caregiver to Dad SCC Stage III T2N1M0 left hard & soft palate, left Node Dx 8/17/05, Neck Dissection 9/6/05 clear margins, Rx 30 ended 11/9/05, Still not cancer free. + path, agressive, upcoming chemo
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#19605 02-02-2006 03:05 AM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | OP "Above & Beyond" Member (300+ posts) Joined: Mar 2004 Posts: 417 | P.Silveira: No one on this sphere knows how or when we will die. I would say it is very unprofessional for a health care person, doctor, nurse, etc. to make such a profound and untrue statement. To state that there is a chance he will die from this is more correct. God is the only entity that knows our fate. If God has a use for your dad he will remain, if not, he will die. It is not my intention to offend any person, sect, religion or creed. But as for me, personally, my belief on my Personal Lord and Savior, Jesus Christ, bolsters my faith in the immortality of the soul and that when I close my eyes in death,they will open again and I will be looking into the face of my savior in his glorious kingdom. Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#19606 02-02-2006 06:30 AM | Joined: Jan 2006 Posts: 16 Member | Member Joined: Jan 2006 Posts: 16 | Thanks G. It's just heart wrenching to hear.... I've been back and forth for two weeks and hadn't had much time to come on. Total anguish....To hear about you and the others. I carry a heavy heart...Much stregnth and healing to all.
P.Silveira *************** Caregiver to Dad SCC Stage III T2N1M0 left hard & soft palate, left Node Dx 8/17/05, Neck Dissection 9/6/05 clear margins, Rx 30 ended 11/9/05, Still not cancer free. + path, agressive, upcoming chemo
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#19607 02-02-2006 03:44 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Aug 2003 Posts: 1,627 | Darrell, I can't imagine your proclaiming your faith would offend anyone. This board is meant to support and I imagine that your faith in our Lord is important to you right now. I am deeply religious also, although I do refrain from referencing it on the board, but know that many of us do tons of fellowship. Love, Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#19608 02-02-2006 06:08 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | The "Good News" is that none of us is in this fight alone. Thanks to Brian and the original members of OCF, we don't have to go down this path unescorted. We have examples to follow, towers of strenght to draw from, support and loving concern to bolster us. Whatever happens at the end just happens. If you believe in God, you are going to a better place. If you believe in reincarnation, you may come back as your favorite animal. If you don't believe in anything, then it's "ashes to ashes and dust to dust". The fact is we, who have joined together here, are not alone in this fight. What a blessing and comfort for all of us. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#19609 02-02-2006 06:31 PM | Joined: May 2005 Posts: 497 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: May 2005 Posts: 497 | My thoughts and prayers are with you. Barb~
[i]"The artist, a traveler on this earth, leaves behind imperishable traces of his being." -Fran
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#19610 02-03-2006 09:03 AM | Joined: Jun 2005 Posts: 72 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Jun 2005 Posts: 72 | Darrel and Frances -
I haven't been around the forum as long as many of you, but feel very much a part of this family. Your messages and wisdom shared here have given strength to so many - more than you'll ever know. My thoughts and prayers are with you both. Please keep us all informed. Carol
Carol R - caregiver to hubby Ken. Stage 4, SCC, BOT. 6/05 dx, 9/25/05 last tx, 5/06 stroke. Four years cancer free! Still taking things 1 day at a time.
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#19611 02-11-2006 10:06 PM | Joined: Jan 2005 Posts: 156 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Jan 2005 Posts: 156 | i am also under scrutiny,spots showing on chest xray going for C.T. scan friday. prayers needed please ....maz | | |
#19612 02-12-2006 04:32 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2004 Posts: 1,116 | Maz, you have my prayers. Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10 ---update passed away 8-27-11---
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