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Joined: Sep 2014
Posts: 86
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Sep 2014
Posts: 86
Glad to hear that your ability to taste food and speak has returned. I had a similar recovery timeline with a similar surgery. Although I didn't have that whole terrible reoccurrence thing to deal with (knock on wood) and I had my rads after my surgery, so I lost my sense of taste twice and it recovered both times.

For me, almost four years later speech can still sometimes be a hurdle. I still have difficulty making certain sounds, so I will occasionally have to come up with a different word to describe what I was trying to say when someone does not understand what I had said. Or sometimes resort to spelling something out in phonetic code because people think I said G when I was trying to say D (Whiskey Tango Foxtrot, haha). But no other real complaints so far.


Dx 2014Jan29 (42 yr old otherwise fit nonsmoker)
SCC tongue stage III T3N0M0
subtotal glossectomy, partial neck dissection, RFFF, trach, NG tube 2014Feb25 16 days in hospital
RAD 25 zaps 2014May5-2014Jun9
Back to work, paddling & hiking shortly afterwards
Joined: Apr 2017
Posts: 61
Supporting Member (50+ posts)
OP Offline
Supporting Member (50+ posts)

Joined: Apr 2017
Posts: 61
So happy for you. I've found that learning from others experiences have helped me the most.


04/21/17 Biopsy at ENT
04/25/17 Biopsy result SCC on left side tongue
04/27/17 CT Scans--shows shallow tumor
05/02/17 Pre-op
05/03/17 Surgery to remove tumor
05/08/17 Cancer still present
05/10/17 2nd surgery-
06/05/17 PET on 6th, RADS start on 06/20/17
07/11/17 Halfway point!
08/01/17 Last treatment
11/1/17 Cancer is back
11/15/17 Emory University surgery. neck dissection, left lymph nodes removed, tongue free flap from left arm with skin graft.
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