| | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) |  Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Wendy, are you ok??? Your post is almost the exact one as yesterday like you did a copy/paste.
Check your PMs!!! Click on the tiny flashing envelope to get your messages.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Apr 2017 Posts: 61 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Apr 2017 Posts: 61 | Quick update: or i hope it turns out quick. I am on my last radiation treatment on Tuesday. Then i will have made it, through one of the most difficult things ive ever experienced.
For informative purposes, i wont sugar coat this. The mouth,gum, and tongue. Sores/blisters have been plaguing my mouth for weeks. Now i can feel them and see them. They are painful and burn, to alleviate the pain i do a number of things. I use magic mouthwash, 50mg fentanyl patch, 2 benadryl, and a 10mg/325mg percoset. At this point in treatment, i sleep a lot. I eat somewhat. Right now it is just water and a couple of sips of boost. I know it HAS to be more, but frankly the burning tongue and my upper palate is so sore and tender that i cry like a 2 year old. I tried soft, jello, creamy soups, clear broth, any kind of soft food. Everything hurts. Thankfully, my team has at least given me 2 hydrations. Ive gotten refills on prescription, and made sure everything
was in order, before im finished with the radiation and oncology team. But i am hanging in there. This will not stop me. Ive went from 267lbs from the beginning of treatment to 228 lbs. Most everyone says that is great. You lost all that weight! I have to remind them that Cancer is the worst diet EVER!
So to all that have gone through this and those to come i wish you all peace and comfort. May the Lord walk with you through your troubled times.
04/21/17 Biopsy at ENT
04/25/17 Biopsy result SCC on left side tongue
04/27/17 CT Scans--shows shallow tumor
05/02/17 Pre-op
05/03/17 Surgery to remove tumor
05/08/17 Cancer still present
05/10/17 2nd surgery-
06/05/17 PET on 6th, RADS start on 06/20/17
07/11/17 Halfway point!
08/01/17 Last treatment
11/1/17 Cancer is back
11/15/17 Emory University surgery. neck dissection, left lymph nodes removed, tongue free flap from left arm with skin graft.
| | | | | Joined: Feb 2017 Posts: 67 Likes: 1 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Feb 2017 Posts: 67 Likes: 1 | Thank you for the update. Hopefully you will find you way through the recovery process with all the support you need. I am so grateful for the PEG tube that kept my husband alive but even more grateful that on Friday, he will have it OUT! You will get through this.
Wife to DP. DX SCC BOT 1/31/17
First treatment 2/27/2017 Cisplatin 3 times and IMRT
Last treatment 4/18/2017
Clear PET 7/13/2017
PEG removed 8/4/2017
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | YIPPEEE!!!! Congrats on finishing your treatments today, Wendy!!!! Im so proud of you. I know you struggled and how difficult this was for you. Time to rest and focus on your intake. If you notice anything different that pops up dont hesitate to call your medical team and get checked out. Of course, you can continue to post here, ask questions or read and absorb info. In only a few more days/weeks you will be feeling a little better. One day you will wake up and feel almost normal, you will be surprised at finally feeling ok for a change. Recovery can be a long and frustrating time. We can never recover as quickly as we think we should. Keep focusing on your intake and it will pull you thru til the time comes when you are feeling more like yourself again. Let the healing begin!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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