| Joined: Apr 2017 Posts: 41 Likes: 1 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Apr 2017 Posts: 41 Likes: 1 | Ok I have my first chemo treatment Thursday morning. They will be treating me with Cisplantin. I have a port put infor the treatment. Radiation will start Thursday afternoon as well. So any dos and dont's? Also, I need to travel to my sons spring football game Sat. Any issues with that travel? Thanks... | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Hi Al! Im glad you have started your treatments so you can get rid of your cancer. When undergoing treatments, be careful around crowds. Your resistance will get progressively more compromised as treatments continue. Just be aware of avoiding any sick people and crowds. Use hand sanitizer often and wash your hands all the time, the more the better. Plus dont put your hands near your eyes, nose or mouth to help avoid spreading germs.
Eat as much as you possibly can!!!! Push yourself to have all your favorites now as your sense of taste and ability to swallow will change temporarily. Its one of the lovely side effects we all go thru. Every single day take in at least 2500 calories and 48-64 oz of water. Especially important is extra water the day prior to, the day of and the day after getting chemo. You want to flush that poison out of your system! Pay close attention to any changes after having chemo, especially hearing and report them to your nurse and doctors immediately. Do NOT get another dose of chemo if you have any issue no matter how minor with your hearing. Cisplatin can be changed to something else. It is known to cause hearing loss which is permanent so pay close attention to this.
Best wishes with everything!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Dec 2016 Posts: 46 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Dec 2016 Posts: 46 | Good luck Al. The only thing I can ad to what Christine said is watch your energy level. The fatigue can hit you like a freight train so just be prepared.
Best of luck and keep us informed with your progress!!
Ed
Edward, 64 yrs 7/21/2016 Dx BOT stage 4 w additional tumors neck & left lymph node 8/15/2016 began Tmt EBT w Cesplatin 1x week for 8 wks. Feeding tube and port. 10/17/2016 finished treatment. CT still shows tissue. Dr. Says 60% chance it is scar tissue. 01/13/2016 PET Scan shows no sign of cancer.
| | | | Joined: Sep 2016 Posts: 111 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Sep 2016 Posts: 111 | Everyone has different reactions to chemo. Talk with your doctor prior to starting about medications that may reduce the nausea and have them available "just in case". Also, have contingency plans in place for minor "emergencies" vomiting / intestinal issues etc. (Because of that, I would recommend being very careful about food intake until you're certain about how your body reacts.)
Good Luck
1997 SCC Tumor on tongue - Partial Gloss 1997 Met to Lymph Radical Neck Dissection / 2nd Partial Gloss 6 weeks chemo and radiation Brachytherapy 2011 Stroke 2014 Recurrence SCC at Base of Tongue / Hemi-gloss Free Flap reconstr from thigh PEG Tube Radiation Permanent Issues with speech and swallowing 2018 - Bleeding throat / mouth 2019 - Bleeding throat / mouth 2019 - 3rd diag Cancer SCC Base of mouth / jawbone 2019 - Aug remove portion of jaw / right pec det / free flap closure and tongue | | | | Joined: Apr 2017 Posts: 41 Likes: 1 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Apr 2017 Posts: 41 Likes: 1 | Where from in Pittsburgh? | | | | Joined: Sep 2016 Posts: 111 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Sep 2016 Posts: 111 | North Hills, (Ben Avon), We've lived there for the last fifteen years +/-
Are you familiar with the Pittsburgh Area?
1997 SCC Tumor on tongue - Partial Gloss 1997 Met to Lymph Radical Neck Dissection / 2nd Partial Gloss 6 weeks chemo and radiation Brachytherapy 2011 Stroke 2014 Recurrence SCC at Base of Tongue / Hemi-gloss Free Flap reconstr from thigh PEG Tube Radiation Permanent Issues with speech and swallowing 2018 - Bleeding throat / mouth 2019 - Bleeding throat / mouth 2019 - 3rd diag Cancer SCC Base of mouth / jawbone 2019 - Aug remove portion of jaw / right pec det / free flap closure and tongue | | | | Joined: Apr 2017 Posts: 41 Likes: 1 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Apr 2017 Posts: 41 Likes: 1 | Born and raised in Plum Borough....live in Alabama now. | | | | Joined: Sep 2016 Posts: 111 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Sep 2016 Posts: 111 | I've moved away from the area twice and always found my way back for varying reasons, career opportunities / finish undergrad degree and go on to complete masters in engineering. My family and in-laws are all from the Pittsburgh area and I honestly cannot think of a better place to raise my kids.
Still a Steelers Fan Right? (I'm actually more of a baseball guy, but the Pirates sure make it hard to be their fans! Heck, hockey playoffs start soon so that will take the sting of the Pirates losing for the next couple of weeks anyway.)
What team does your son play for?
1997 SCC Tumor on tongue - Partial Gloss 1997 Met to Lymph Radical Neck Dissection / 2nd Partial Gloss 6 weeks chemo and radiation Brachytherapy 2011 Stroke 2014 Recurrence SCC at Base of Tongue / Hemi-gloss Free Flap reconstr from thigh PEG Tube Radiation Permanent Issues with speech and swallowing 2018 - Bleeding throat / mouth 2019 - Bleeding throat / mouth 2019 - 3rd diag Cancer SCC Base of mouth / jawbone 2019 - Aug remove portion of jaw / right pec det / free flap closure and tongue | | | | Joined: Apr 2017 Posts: 41 Likes: 1 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Apr 2017 Posts: 41 Likes: 1 | Plays for South Alabama in Mobile | | | | Joined: Sep 2016 Posts: 111 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Sep 2016 Posts: 111 | How are you doing? Hopefully you were able to enjoy a good football game.
Chemo can be a real hard part of the treatment / cure. The whole process is really tough on your body.
Have you set up a good support system yet?
If you want to talk off board just send a private email. (Flashing envelope icon at top of page).
Good luck
1997 SCC Tumor on tongue - Partial Gloss 1997 Met to Lymph Radical Neck Dissection / 2nd Partial Gloss 6 weeks chemo and radiation Brachytherapy 2011 Stroke 2014 Recurrence SCC at Base of Tongue / Hemi-gloss Free Flap reconstr from thigh PEG Tube Radiation Permanent Issues with speech and swallowing 2018 - Bleeding throat / mouth 2019 - Bleeding throat / mouth 2019 - 3rd diag Cancer SCC Base of mouth / jawbone 2019 - Aug remove portion of jaw / right pec det / free flap closure and tongue | | |
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