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| | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) |  Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | I love happy updates  Im very glad you will stick around!!! Ive made many life long friends thru this site. Im sure you will too. OC patients/survivors and their caregivers share a common bond. We're like one huge extended family OCF has oral cancer events all over the country. Our Director of Events, Susan Lauria hosts the Andover NJ event. Sadly, Susan lost her brother to OC after a long hard battle. I always try to attend this event. There are at least 20 survivors who go every year. Maybe you would like to attend too?
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Dec 2016 Posts: 46 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Dec 2016 Posts: 46 | Thanks Christine. I googled it and I see it's on September 23, 2017. So sorry for Susan's loss.
Thanks for the heads up. I would love to attend.
Edward, 64 yrs
7/21/2016 Dx BOT stage 4 w additional tumors neck & left lymph node
8/15/2016 began Tmt EBT w Cesplatin 1x week for 8 wks.
Feeding tube and port.
10/17/2016 finished treatment. CT still shows tissue. Dr. Says 60% chance it is scar tissue.
01/13/2016 PET Scan shows no sign of cancer.
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