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Joined: Nov 2014
Posts: 73
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Nov 2014
Posts: 73
Dear gmcraft

That is my plan right now. It's only a week cruise I am taking wife, daughter and granddaughter. I have insurance. I have Onc's approval. I want to enjoy life again. Prior to cancer we were travelers. I am looking forward to this.

This forum has helped me so many times during my treatment. It has been a wealth of information and I am forever grateful.

Thank you and bless you all for your kindness.

Larry


T4,N2,MO SCC of the BOT hpv+
Weekly Taxol/Carboplatin w/ 44 rad 73 GY Nov 2014 - Jan 2015
PEG tube feedings (Liquid Hope). Removed PEG 7/7/2015
Clear 4.9.2015 PET/CT H&N.
11mm low SUV nodule RUL on lung PET/CT
2nd PET 8.25.15 10+ numerous nodules bi later lungs
9.9.15 Lung biopsy SCC Org BOT
Avastin and Torisel clinical trial 11/15-3/16 MDA
Home 5/23/16 Pet scan 50% growth & +SUV
Opdivo 6/2016
Synthroid 100 mcr
Scan tumors shrinking
Teeth decay 9/2016
Joined: Nov 2014
Posts: 73
Supporting Member (50+ posts)
OP Offline
Supporting Member (50+ posts)

Joined: Nov 2014
Posts: 73
Onc says crowns are ok. No extractions. What kind of problems could I encounter. Infection? Impressions possibly pulling teeth out?


T4,N2,MO SCC of the BOT hpv+
Weekly Taxol/Carboplatin w/ 44 rad 73 GY Nov 2014 - Jan 2015
PEG tube feedings (Liquid Hope). Removed PEG 7/7/2015
Clear 4.9.2015 PET/CT H&N.
11mm low SUV nodule RUL on lung PET/CT
2nd PET 8.25.15 10+ numerous nodules bi later lungs
9.9.15 Lung biopsy SCC Org BOT
Avastin and Torisel clinical trial 11/15-3/16 MDA
Home 5/23/16 Pet scan 50% growth & +SUV
Opdivo 6/2016
Synthroid 100 mcr
Scan tumors shrinking
Teeth decay 9/2016
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
No extractions probably due to the risk of osteoradionecrosis (ORN). Thats where the jaw bone dies and needs to be removed. This can be very painful!!! It can be a small area or if not taken care of the area grows making it more difficult to treat. With what you are currently going thru Im thinking the doc wouldnt let you do hyperbaric oxygen treatments (HBO). Normally OC patients who have ORN do 20 HBO prior to and 10 after having a tooth or ORN removed.

The main OCF site is being updated so the info on ORN unfortunately is not currently available. If you use our search function by entering key words osetoradionecrosis or hyperbaric oxygen then you will find many threads for both. This has been discussed many times here so there are tons of posts to read and so much info from many members weighing in on these subjects.

Good luck!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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