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Joined: Apr 2011
Posts: 131
"OCF across the pond"
Senior Member (100+ posts)
"OCF across the pond"
Senior Member (100+ posts)

Joined: Apr 2011
Posts: 131
I had my 5 year scan and discharge appointment. The scan showed up some tissue which the doc said looked unexciting....it may be infection or scar tissue and I need another scan. I'm now pretty worried about it coming back and treatment. They don't want to see me for another 12 weeks should I be worried? I'm trying to be positive as when scoped in June all looked fine.


Scc nasal cavity /hard palate
Surgery removal of septum and roof of mouth 15/3/11 cl margins
Rt and cisplatin 6 weeks starting 24/5/11
Obturator

Age 45
Joined: Oct 2012
Posts: 1,275
Likes: 8
Assistant Admin
Patient Advocate (1000+ posts)
Assistant Admin
Patient Advocate (1000+ posts)

Joined: Oct 2012
Posts: 1,275
Likes: 8
Hi Jayne, it looks as if your doctor cannot be sure until there's more info. There's not much point in worrying about it for the time being and making yourself all anxious. If it is really a concerning case, the doctors would have ordered further tests right away instead of waiting. I have learned from my husband's treatment to take it a day at a time, otherwise I would have lived in a constant state of great anxiety and that would help no one. Of course, you can always be proactive and contact your doctor if you see changes before the three months are up.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.

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