| | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) |  "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | so glad you are doing well. My advice is to see him annually and do whatever else he says. sometimes this kind of thing can go unnoticed - better to have another set of eyes look occasionally. hugs and blessings to you.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Thanks for returning and posting. This will give others hope! Best wishes for continued good health.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Apr 2013 Posts: 319 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Apr 2013 Posts: 319 | I know it's counter-intuitive, but I suggest that you put your mind into a neutral state with regard to the news. I always suggest that you avoid attaching to any particular outcome. The news is always going to be what it is, and if you are not attached to any particular outcome, the good news will be still be good news, but if the outcome is bad news, you will have been spared the agony of anticipation.
And frankly, the fear of the bad news is almost always quite a bit worse than the actual outcome itself.
Fear (or it's flip side, Hope) tends to program one to secretly expect one outcome. Avoiding both does not change the outcome, but it does prevent a lot of suffering when the outcome is not the one you attach to.
And finally, reality is always going to be reality, it's almost never as bad as your fears, and it's almost never as good as your ideal of it might be. It is what it is.
My intro: http://oralcancersupport.org/forums/ubbt...3644#Post16364409/09 - Dx OC Stg IV 10/09 - Chemo/3 Cisplatin, 40 rad 11/09 - PET CLEAN 07/11 - Dx Stage IV C. (Liver) 06/12 - PET CLEAN 09/12 - PET Dist Met (Liver) 04/13 - PET CLEAN 06/13 - PET Dist Met (Liver + 1 lymph node) 10/13 - PET - Xeloda ineffective 11/13 - Liver packed w/ SIRI-Spheres 02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node 03/15 - Begin 15 Rads 03/24 - Final Rad! Woot! 7/27/14 Bart passed away. RIP!
| | | | | Joined: Jan 2013 Posts: 10 Member | | OP Member
Joined: Jan 2013 Posts: 10 | I am revisiting this site after three years. Originally, my dentist discovered a white spot on the underside of my tongue. It was removed and biopsied and the result was mild epithelial dysplasia. I have continued to perform weekly self exams. I visited my dentist on 2-2-16 and he did a full exam, but did not notice anything unusual. On 2-24-16, during my weekly self-exam, I noticed a very small white spot on the gum below my front teeth. I was away for a three week trip and called the oral surgeon upon my return. He could not believe I discovered the spot as it is very small and suggested we wait a month before removal. I returned yesterday and had it removed and sent for a biopsy.
What I am wondering is if this is a common occurrence? I am in good health, non-smoker, non-drinker, age 61. I don't have any risk factors of which I am aware. Any suggestions or comments are welcome. Thanks in advance.
White sore underneath tongue, mild epithelial dysplasia, 2-13
Hyperparakeratosis 5-16
| | | | | Joined: Jan 2013 Posts: 10 Member | | OP Member
Joined: Jan 2013 Posts: 10 | Posting in hopes this may be helpful to someone. Biopsy came back as Hyperparakeratosis which to my understanding is like a thickening of the gum or is like a callus. Surgeon suggested that I continue yearly exams by dentist and weekly self exams. Return to him if I have any sores that do not heal after three weeks. Thanks again for the great information and support.
White sore underneath tongue, mild epithelial dysplasia, 2-13
Hyperparakeratosis 5-16
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Thanks for coming back to update what your results were. Congrats on being fortunate enough to not need our group!!!! You are one lucky lady!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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