| Joined: Feb 2007 Posts: 61 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Feb 2007 Posts: 61 | Around 4 years after radiation my ENT had a baseline ultrasound done on my carotid artery. The results should nothing significant. Then at 6 years, he pronounced me cured and set me free from his care. I'm now at 9 years post treatment. The only doctor monitoring me is my super dentist (prosthodontist), and endocrinologist (growing thyroid nodules). I'm going to call the ENT's office and ask, but I'm curious if others have had follow-up ultrasounds on their carotid artery, and at what intervals.
SCC, right tonsil, T1N0MO, G3, HPV-33 positive, 7 wks IMRT 2/21/07-4/13/07, 48 year old female when diagnosed, non-smoker, weekend wine drinker, tumor and both tonsils removed. Ethyol for 3 weeks; no peg; only minimal longterm side effects
| | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | "OCF Kiwi Down Under" Patient Advocate (1000+ posts) Joined: Mar 2011 Posts: 1,024 | Kris is 5 years post radiation now. I have asked about getting an ultrasound scan of his Carotids, but was told that he did not meet the criteria. Given that he doesn't have any symptoms, dizziness/fainting, I guess I'm ok with this. Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT. PET 6/11 clear. R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in. March 2017 - 5 years disease free. Woohoo!
| | | | Joined: Oct 2006 Posts: 383 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Oct 2006 Posts: 383 | After my second fight, when I got to five years out my surgeon told me he would now see me just once per year and nothing like that even came up. Of course two and a half years later it all started over again.....
SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!
**** PASSED AWAY 10/8/16 ****
| | | | Joined: Feb 2007 Posts: 61 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Feb 2007 Posts: 61 | I called the ENT's office, and was told unless I'm having symptoms they don't do anything more. They monitored me for six years, which was one more than usual, and there was no reason to return. I guess the "baseline" is only used as a reference if there are future issues or perhaps to pick up problems that present within the baseline.
SCC, right tonsil, T1N0MO, G3, HPV-33 positive, 7 wks IMRT 2/21/07-4/13/07, 48 year old female when diagnosed, non-smoker, weekend wine drinker, tumor and both tonsils removed. Ethyol for 3 weeks; no peg; only minimal longterm side effects
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | I had a doppler ultrasound a year ago, upon my request, at my cardiologists office being I only have one side with blood flow since the left internal and external carotid arteries were removed during cancer surgery, which came back with no blockage. I have read literature that suggests this test maybe should be done yearly, 3 or 5 years after treatment, when stenosis may begin, and risk increases as we age, and the further we are out from radiation, and depending on where you were radiated, amount of radiation, and other risks, and some maybe sooner that are at higher risk for artherosclerosis who smoke, have diabetes, high cholesterol, high blood pressure and such. That's my brief understanding, and guess it's something to discuss with your health team, but here is the OCF page on Carotid Artery Stenosis that explains it better. http://www.oralcancerfoundation.org/complications/carotid-artery-stenosis.php
Last edited by PaulB; 05-27-2016 04:08 AM.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
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