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Joined: Sep 2015
Posts: 6
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Joined: Sep 2015
Posts: 6
Jeff,
So happy you got approved! Best of luck with jaw infection It's never easy is it.


Caregiver to husband
1998 BOT SCC surgery/rads/chemo
1999 lung met, resected
2000 lung met, resected
2000 Cisplatin /5-FU
NED 14 years
10/14 BOT new primary
10-12/14 reirradiation Proton/ carbo/taxol
NED 6 months
6/15 PET/CT suspicious neck node
7/15 massive throat bleed, ICU ,Trach, PEG
9/15 trach removed. carbo/taxol for lymph mets
1/16. CT radionecrosis hyoid bone and surrounding tissue
4/16 total laryngectomy/bilateral neck dissection
NED 5/16
Joined: Oct 2012
Posts: 1,275
Likes: 7
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Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: Oct 2012
Posts: 1,275
Likes: 7
Jeff, there is no need to apologize or to thank me for throwing in my five cents' worth. I was so glad to hear you got approval for Opdivo and hope you will start soon. I stay on the forum because I personally learned so much from everyone and it is my way of paying it forward. I care because head and neck cancer is still fairly rare compared to the major cancers and there is not so much awareness of it. But the damage it does can be major as you and I have both found out.

Wishing you a speedy resolution for your jaw problems so that you can get started on Opdivo.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
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