#19096 12-02-2005 09:34 AM | Joined: Nov 2005 Posts: 105 Gold Member (100+ posts) | OP Gold Member (100+ posts) Joined: Nov 2005 Posts: 105 | Jerry,
I have a father & son team. The father is the oral surgeon and the son is the dentist. I will be put under for the procedure. I have to have a few teeth removed that I had root canals on years ago. I also have a tooth that I broke just prior to my radiation. I have a temporary filling in it. The dentist thinks I'll have to have it pulled as well. I had a pandoramic? x-ray done on my jaw. I have to meet with them again next week to finalize the plans.
John
SCC base of tongue. Diagnosed as stage IV, Sept. '04. Partial glossectomy, Radical neck dissection left side, 37 Radiation sessions, Chemo x 7 weeks. Finished treatments January '05. Cancer surivor!
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#19097 12-02-2005 10:34 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | John, Just curious also since I also have teeth that have moved around some since pre-radiation, have you had hyperbaric oxygen therapy before this? If not, what about the risk of ORN?
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#19098 12-02-2005 12:59 PM | Joined: Nov 2005 Posts: 306 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Nov 2005 Posts: 306 | John and Nelie - I too am interested in the possibilities. ORN is a real danger for all of us with night-glow jaws. Does anyone have history with reconstructive jaw work AFTER rad? Anybody have any experience with ORN? Has anyone been able to get a refund for the stupid mask?? Tom
SCC BOT, mets to neck, T4. From 3/03: 10wks daily multi-drug chemo, Then daily chemo with twice daily IMRT for 12 weeks - week on, week off. No surgery. New lung primary 12/07. Searching out tx options.
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#19099 12-02-2005 01:46 PM | Joined: Nov 2005 Posts: 105 Gold Member (100+ posts) | OP Gold Member (100+ posts) Joined: Nov 2005 Posts: 105 | Please excuse my ignorance, but what is ORN / hyperbaric oxygen therapy? It's all Greek to me!
John
SCC base of tongue. Diagnosed as stage IV, Sept. '04. Partial glossectomy, Radical neck dissection left side, 37 Radiation sessions, Chemo x 7 weeks. Finished treatments January '05. Cancer surivor!
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#19100 12-02-2005 01:56 PM | Joined: Nov 2005 Posts: 105 Gold Member (100+ posts) | OP Gold Member (100+ posts) Joined: Nov 2005 Posts: 105 | Got a good one for you guys. While I was in the hospital last year recuperating from my surgery. I somehow managed to have kidney stones. Made me forget about the pain I had from the surgery in a heart beat. Never before in my life had I experienced THAT kind of pain. It was excrutiating. Talk about adding insult to injury. I couldn't talk because I still had my trach in, but I let the nurses know in no uncertain terms that I needed something done and done in a hurry.
John
SCC base of tongue. Diagnosed as stage IV, Sept. '04. Partial glossectomy, Radical neck dissection left side, 37 Radiation sessions, Chemo x 7 weeks. Finished treatments January '05. Cancer surivor!
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#19101 12-03-2005 08:26 PM | Joined: Nov 2005 Posts: 306 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Nov 2005 Posts: 306 | John - ORN is (I think) Osteo-Radio-Necrosis. Its a dangerous degenerative condition that can occur in radiated tissue. I don't know the mechanism, but small sores or injuries do not heal, rather they grow very large and become threatening to surrounding tissues.
ORN in the jaw can cause the complete loss of the entire jaw. The radiation so damages the blood vessels that they cannot supply injured sights with healing fluids - precipitating the catastrophic loss of tissue. Its really ugly stuff. It is the fear of ORN that keeps most of us from risking any surgeries in the radiation field. It can be risky.
Hyperbaric Oxygen treatment is a mechanical method to attempt to oxygenate damaged tissue. It is, I believe, the treatment of choice to try and stop ORN from advancing.
Please seek better definitions of both of these terms. My knowledge is limited, and you need solid information about both of them. Your doc can help you. Hope this helps a little. Tom
SCC BOT, mets to neck, T4. From 3/03: 10wks daily multi-drug chemo, Then daily chemo with twice daily IMRT for 12 weeks - week on, week off. No surgery. New lung primary 12/07. Searching out tx options.
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#19102 12-03-2005 10:15 PM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | John, For what it's worth, my oral surgeon, who has a lot of experience treating patients who have had oral radiaton, says some of his patients who have had oral radiation choose to have oral surgery such as tooth extractions without Hyperbaric oxygen therapy (HBO) and take their chances with ORN, especially if he believes their risk is low because of their radiation plan (apparently with IMRT radiation, less of the jaw is likely to be severly damaged by radiation than with general field radiation). I think this is in part because anyone living here would have to drive oevr an hour each way to GET HBO and you have to go every day for several weeks of treatment. He says often they don't have a problem, but once in a while they do.
Apparently the standard the recommendation is that you have a certain number of HBO therapy sessions before any surgery that affects the jaw (O'm thinking he said 30 but I'm not at all sure I'm recalling that right) and then a few more after in order to be sure the jaw is going to heal OK.
It also apparently helps heal soft tissue that may be permanently injured from radiation. There are other folks here who can say more about that.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#19103 12-04-2005 11:31 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Hi, I'm not a dentist or medical at all but since no one else has responded to your questions about HBO and ORN I wil try.
HBO is hyperbaric oyxgen treatments. I was told prior to my radiation that these HBO treatments, about 30 of them, would be an absolute necessity before I had any dental surgery after having radiation. This is the only reason that I allowed them to pull some teeth before radiation.
ORN is osteoradionecrous (sp?) which is basically the bone dying and can lead to major problems. I think you need to get a second opinion before you dive into this dental surgery without HBO.
I havent' read it, but try the dental section of this web site and see what it tells you.
Please someone else more qualified to address this, update this issue.
Thanks, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#19104 12-04-2005 12:28 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,219 | Hi J,
Interesting set-up with the father and son team. I was wondering how you would have all the work done by a surgeon. Makes sense. We do the same thing in our office, but not by a father and son. Good luck.
It is "panoramic" x-ray, just like it is used in photography.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#19105 12-04-2005 03:04 PM | Joined: Nov 2005 Posts: 306 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Nov 2005 Posts: 306 | Jerry - Can you address the issue of ORN in more detail? My knowledge of it is very limited and I'd like to know more. What are the risks? Nelie posted about IMRT limiting the risks. How does that work? Your input would be very welcome. Tom
SCC BOT, mets to neck, T4. From 3/03: 10wks daily multi-drug chemo, Then daily chemo with twice daily IMRT for 12 weeks - week on, week off. No surgery. New lung primary 12/07. Searching out tx options.
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