| | Joined: Mar 2015 Posts: 55 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2015 Posts: 55 | Hi everyone. It's been about five weeks since my last post and I thought I'd just bring things up to date. I'm moving over here from Currently In Treatment because, well, treatments are ended, the PEG is out, I am back at work and beginning to have a life again. It sure feels good to be feeling good! I've been pondering why I had this big gap between my last post and this one. I guess I just felt like getting through the post-treatment blahs and into a general recovery from treatment side effects without a whole lot of drama. I had come to think of myself as a cancer patient first and a human being second, strange as that sounds. And the idea of coming back here just felt like it would amplify that feeling. I know it doesn't make any sense, but it's easier to see that now than it was from the bottom of the recovery curve. I am still and will always be grateful for the information, encouragement and inspiration I found here as I was starting my journey. Now as I'm transitioning back into a new-normal life and waiting for my post-treatment scan on September 24, I feel pretty well prepared to deal with the mental side of this -- the impatience in treatment symptoms' resolution (sure would be nice to be able to taste ice cream!  )and the worry over what the scan will show (remembering to put aside things outside my control). So I guess this post is to acknowledge and thank you all for the help early on, and to let you know that I'm going to be all right, no matter what. Also, to share with anyone who might be where I was several weeks ago the fact that things get better and you get a life back when you come out the other end.
Peter, age 62 at Dx
3/27/15 Dx T2N2aM0 Tonsilar P16+ G3 SCC
4/6/15 Full PET clear except for above
4/24/15 TOLM tonsillectomy/clear margins. Neck dissection 20 nodes (1 w/cancer & extracapsular extension)
5/28/15 PEG in
5/27 - 7/10/15 Daily Radiation to 66 units cumulative; Cisplatin weekly X 7
8/24/15 PEG out
9/24/15 Full body PET - N.E.D.
12/22/15 CT and physical exam. Continued clear.
3/11/16 Physical exam. Continued clear.
7/12/16 One year post-treatment! CT clear.
7/7/17 2 years post - still clear
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 8 | Thank you for coming back and sharing your success with us. OC is a horrible disease with barbaric treatments. We all have a common bond and completely understand what you have been thru and the emotional roller coaster it causes.
Hope you check in with us from time to time. Remember, a complete recovery can take 2 full years, it takes lots of patience. Best wishes with your continued improvements in your recovery phase!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Apr 2015 Posts: 91 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2015 Posts: 91 | We were diagnosed about the same week. I am so glad you are doing well and getting on with life. Happy for you and your family! Denise
Biopsy tongue 3/24/15
Diagnosis SCC tongue/floor of mouth
Partial glossectomy, resection and right neck dissection done
4/22/15
T2aN0M0
05/01/2015-no further treatment indicated at this time,
monthly check ups for two years
| | | | | Joined: Jun 2007 Posts: 595 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 595 | Keep up the good fight with this Beast and may you have many good years ahead!! Semper-Fi Bob
Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
| | | | | Joined: Jul 2009 Posts: 1,409 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 Likes: 1 | That's wonderful to hear, Peter. Glad you're here with your family and we look forward to hearing from you for many, many years to come.
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
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This is another custom island. This one could be used for ads. This spot is one of the best places for ads on your site to be placed. This can be enabled/disabled on a per forum basis.
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