| | Joined: Mar 2015 Posts: 71 "OCF across the pond" Supporting Member (50+ posts) | OP  "OCF across the pond" Supporting Member (50+ posts)
Joined: Mar 2015 Posts: 71 | Hi all it's with an aching heart I'm telling you that my dad passed away yesterday :((( the lump under neck was cancer and had been getting worse and the tumour had a hole in it then two more lumps have developed over a week x dad hasn't been sleeping as he has been that worried and it was all playing on his mind and he became so scared he started seeing things  it's been awful to watch his struggle but his mind just couldn't cope and he was so sleep deprived he just couldn't cope they had to sedate him but everhtime he woke up he was panicking and seeing things and so worried and scared so they had to sedate him x the doctor said they had to keep him sedated and if his air ways give in they couldn't ressusate because of the disease in his neck so they just kept him asleep till he took his last breathe at 1.15 yesterday :((( I'm absolutky heartbroken but I no he's at rest now ;( how awful to be that scared you can make your mind do things like that x I love him so much and I will miss him with all my heart xxxx
Father 60 years old
Diagnoised oc jan 15
Peg fitted 27/2/15
Full tongue glossectomy reconstruc surge ,
Lymph nodes and glands out 5/3/15
Rt 14/5/2015
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Im so very sorry for your loss, Delly! May the memories of happier, healthier of times help to ease your sorrow.
RIP
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2011 Posts: 945 | Delly,
It is such a cruel thing that he had to pass so young, when he should have had many years with his family. You did all you could to help him, but no matter how hard we try, we are only human, and cannot give back health in all cases. What it is within our power to do is to give love and care and companionship: you faced your own fear and distress to do this. Not all people are capable of doing what you did.
It is my hope and belief that your father is in a better place, now, free from pain. As you mourn for him, remember this, and remember that he would want his dear daughter to move back into the light.
Blessed be,
Maria
Last edited by Maria; 08-23-2015 08:19 AM.
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | | Joined: Apr 2015 Posts: 91 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2015 Posts: 91 | I have been following your posts. I am sorry to hear about your Dad. You did an amazing job of taking care of him. I will be praying for you.
Denise
Biopsy tongue 3/24/15
Diagnosis SCC tongue/floor of mouth
Partial glossectomy, resection and right neck dissection done
4/22/15
T2aN0M0
05/01/2015-no further treatment indicated at this time,
monthly check ups for two years
| | | | | Joined: Jun 2007 Posts: 595 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 595 | I am sorry for your loss, remember the good times and cherish his love and know that he was blessed to have you as a caregiver! Semper-Fi Bob
Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
| | | | | Joined: Nov 2009 Posts: 644 Likes: 1 "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts) | | "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts)
Joined: Nov 2009 Posts: 644 Likes: 1 | So sorry to hear that, Delly. Take care of yourself and try to remember better days with you dad. Much love to you both.
1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
| | | | | Joined: Mar 2015 Posts: 71 "OCF across the pond" Supporting Member (50+ posts) | | OP "OCF across the pond" Supporting Member (50+ posts)
Joined: Mar 2015 Posts: 71 | Thankyou everyone xxx I no the pain will heal and I no time will help x I will miss helping me dad and I love him with all my heart xx I told him when they sedated him how much I love him and that is was time to let go now and within 10 mins he was gone :(((( x I hope he heard me and i hope it brought him that not of help to let go ;((( xxxx thankyou for helping me with all your posts xxxx
Father 60 years old
Diagnoised oc jan 15
Peg fitted 27/2/15
Full tongue glossectomy reconstruc surge ,
Lymph nodes and glands out 5/3/15
Rt 14/5/2015
| | | | | Joined: Mar 2014 Posts: 79 "OCF across the pond" Supporting Member (50+ posts) | | "OCF across the pond" Supporting Member (50+ posts)
Joined: Mar 2014 Posts: 79 | Oh Delly , I am so sorry for your loss. Your father was so brave and so are you . I have followed your posts and think you have been amazing throughout . Im sure that you will feel very lost and wonder what life is all about at times . Your dad fought a brave battle with this truly awful disease and you stood at his side every step of the way . I'm with you when you say that your heart is broken , I'm watching my dad deteriorate each day , one minute I, wishing he would go peacefully in his sleep putting an end to his suffering and then selfishly I cannot imagine my life without him in it. ....... I hear you , do whatever you need to get through. Big hugs xxx
I'm at Christies Tuesday myself 3 month check up, whenever I go I wondered if I'd bump into you . Xxx
Di 47 none smoker / drinker
T4 SCC left tonsil
1 Cistplatin,30 RAD finished treatment on 4/12/2013
Trismus
First MRI scan appears clear
TX
NG tube 9 weeks
acute vommiting, syringe driver 9weeks
2 month checks
| | | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | | "OCF Kiwi Down Under" Patient Advocate (1000+ posts)
Joined: Mar 2011 Posts: 1,024 | Delly, I am so sorry to read this update. Your Dad fought very bravely and you were an outstanding Caregiver and support to him.
May he rest in peace. Look after yourself.
Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
| | | | | Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2006 Posts: 756 Likes: 1 | Delly,
I am very sorry to read about your father. I'm sure he knew how much you loved him and all that you did for him. He is now pain free. Cherish the happy memories. My thoughts and prayers are with you.
Susan
SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
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