| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | If you want to read more about HPV or Erbitux, click on those words and it will take you to the main OCF pages where there is tons of info about these subjects just to name a few. From what Ive seen on the forum about those who have been given Erbitux, they usually get a itchy rash. The more rash they get, the better the chemo is working. The very best thing you can do is focus on your intake. If you are nauseous or the food isnt tasting good, I know its not easy but you must push yourself. When going thru rads and chemo, it will get progressively harder as you go on. Even when you are finished with treatments both the chemo and radiation continues to work making you feel horrible. Every single day push yourself to take in a bare minimum of 2500 calories and 48-64 oz of water. If you can get more in that will only help you to make this whole thing easier. If you begin to have swallowing issues, you still need to take small sips of water several times thru out the day to keep those muscles from forgetting how to function correctly. As with any medication, report any and all side effects to your doctor. You may think its minor and no big deal but it could be a sign of bigger problems. Everything you wrote was correct about the Erbitux, cisplatin and what you know so far. Sounds like you have a great team working for you. Check in with us often. We follow along with yoru progress and are rooting for you. Good luck! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | Thank you Doug. Was just curious, and keeping abreast, as to the current thought, changes, with Erbitux as my treatment with it was almost 3 years ago, and keeping track of a few things since. Good luck
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Jun 2007 Posts: 595 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2007 Posts: 595 | Good luck and hang tough in this WAR as the battles have just begun. Take it one day at a time as the side effects can get worse before they start to retreat!! Semper-Fi Bob
Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
| | | | Joined: Nov 2014 Posts: 66 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Nov 2014 Posts: 66 | Hi Doug, I went through treatments earlier this year. Eat as much as you can of what ever you can for as long as you can because you will not regret it.
Take good care of your skin during radiation, it can make a huge difference. There's a regiment that I used that I had great success with. You do need to lubricate your skin right after every treatment and continue several times a day.
It's good you have a port, it'll help so much.
Do you have an appointment calendar on your phone that you and your wife can share? Yes, it's going to get super rough but you can do it. Your wife can be a great help.
Complain about whatever you like, it's okay. Come here and rant if you need to because during those bad days, you might need to. There's also all sorts of suggestions we can give you for all sorts of troubles. Keep us informed as to what's happening
HPV+ P16 positive squamous cell carcinoma
Oct 2014 found neck node lumps Went to Oncologist (TNBC) Ultrasound 2 CT Scans - body/head and neck Needle & core biopsy Pet Scan Biopsy to find primary w/ anesthesia - failed Second Opinion found primary & biopsied Biopsy confirmed HPV+ P16 Squamous cell carcinoma Radical Neck Dissection 11/22/2014 32 lymph nodes removed - 3 positive Ported 12/29/14 Chemo and rads to start January 5, 2015 cisplatin weekly 40 mg/m2 Rads M-F for 7 weeks
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