| | Joined: Apr 2015 Posts: 91 Supporting Member (50+ posts) |  Supporting Member (50+ posts)
Joined: Apr 2015 Posts: 91 | So sorry to hear of your loss. I hope you feel some comfort in knowing you took such good care of Steve. Please accept my deepest condolences. Denise
Biopsy tongue 3/24/15
Diagnosis SCC tongue/floor of mouth
Partial glossectomy, resection and right neck dissection done
4/22/15
T2aN0M0
05/01/2015-no further treatment indicated at this time,
monthly check ups for two years
| | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2011 Posts: 945 | Danielle
the pictures of you and Steve are beautiful, and you were both so lucky to have each other even if it should have been for a much longer time.
Please remember that Steve loved you, and he would not want you to feel guilty or bad. You did what was humanly possible to do. It is hard that you were not told when the life support would be disconnected - but maybe Steve would not have wanted you to be there. Death is an odd thing - some people want their loved ones there, others wait until they are out of the room.
I'm sorry that you were not able to come to some sort of resolution with Steve's mom. That may never happen, or it may happen years from now when you least expect it.
Please be kind to yourself - this has been a very hard road for you as well.
Maria
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | | Joined: Nov 2009 Posts: 644 Likes: 1 "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts) | | "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts)
Joined: Nov 2009 Posts: 644 Likes: 1 | Danielle, the photos are lovely and remind me of how young you are. How unfair it was for Steve to lose his life so young. It must be terrible for his parents who will not be acting rationally right now so don't take the way they are treating you personally. You were heroic in how you looked after your boyfriend and now you need to pick your life up again. Maybe you can write to his parents on a later anniversary and try to make peace with them.
Best wishes
Maureen
1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
| | | | | Joined: Apr 2014 Posts: 236 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Apr 2014 Posts: 236 | So sorry for your loss. I know how you feel as I lost my mom April 22,2014 . After being a caregiver to my mom for the past year it really hits home not having her here any more. I hope you find peace as I'm trying to do but it sure is hard. I'm grieving so much everyday but at least I know my moms pain is gone and that alone brings me peace.
Maybe you should copy your journey here on OCF and send it along with a letter to his parents. At least it will show how much you cared for there son. For this they should treasure.
You have beautiful Pictures of you and your Sonny . Such beautiful memories.
Prayers
Heidi
Last edited by sweetpe1; 05-26-2015 11:15 PM.
Sweetpe
Caregiver
RE:My Mother
Age 70
Non Smoker
SCC 3/4/2014 Left rear jaw
Mandiblctmy 3/25/2014
35RAD Completed on 06/03/2014
MRI 9/3/2014
25mm lobulated recurrence left mandible/floor of mouth carcinoma
9/23/14 Salvage Surgery
MET(s)
9/23/14 Salvage Surgery Not Successful
Chemo Recommended
1st Round of Cisplatin Chemo Started 10/20/14
Cisplatin stopped 11/20/14. Side affects to bad.
Chemo started again 1/22/15 Carbo/Docetaxel
Passed Away April 22,2015
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 |
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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