| Joined: Apr 2014 Posts: 236 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Apr 2014 Posts: 236 | My mom took treatment No. 2 of Carboplatin/Docetaxel and its taking a toll on her. The Mucus is so thick that she cant swallow anything. Looks like I'm going to bring her to get IV fluids again. That seems to pick her up after she takes a treatment. I thought she was going to do well with this treatment. I guess it gets worse each time. So this means she's back to no eating or drinking again which is not good.
My mom has a open wound on her neck that just will not heel. It seems to be getting bigger. I have a wound care nurse coming to the house to pack it. Doctor says the only thing we can hope for is that the cancer responds to treatment then hopefully her skin will heal. Its very painful. Doctor said it's caused from a ulcerating tumor. It really looks terrible. Has anyone had anything like this before ?
I wish my mom would get better. I hate seeing her like this.
Another sleepless night Heidi
Last edited by sweetpe1; 02-15-2015 02:09 AM.
Sweetpe Caregiver RE:My Mother Age 70 Non Smoker SCC 3/4/2014 Left rear jaw Mandiblctmy 3/25/2014 35RAD Completed on 06/03/2014 MRI 9/3/2014 25mm lobulated recurrence left mandible/floor of mouth carcinoma 9/23/14 Salvage Surgery MET(s) 9/23/14 Salvage Surgery Not Successful Chemo Recommended 1st Round of Cisplatin Chemo Started 10/20/14 Cisplatin stopped 11/20/14. Side affects to bad. Chemo started again 1/22/15 Carbo/Docetaxel Passed Away April 22,2015
| | | | Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) | Assistant Admin Patient Advocate (1000+ posts) Joined: Oct 2012 Posts: 1,275 Likes: 7 | Heidi, I'm sorry your mom is having a hard time with the chemo. Unfortunately, the effects of chemo are cumulative and she may feel even worse with the upcoming sessions. Do talk to your doctors about what you can do to alleviate the effects of some of the side effects so that you know ahead of time what to expect and how you can help her. My thoughts are with you and your mom.
Gloria She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016. | | | | Joined: Apr 2014 Posts: 236 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Apr 2014 Posts: 236 | Thanks so much
I have a home health nurse coming to the house and she said she does wound care to, but I think I am going to look for a better qualified nurse to handle this. She doesn't impress me at all . would anybody know if there is a certain type of nurse I should request . Someone who is experienced with this type of wound. Its not like a Diabetic wound that will eventually heel. This is cause from the cancer in the tissue of my moms cheek and neck. I don't think it will heel anytime soon. There is some leakage from the wound also.
I am so upset for my mother. She ask me "What did I do to deserve this" . I just don't know what to say sometime.
Thanks Heidi
Sweetpe Caregiver RE:My Mother Age 70 Non Smoker SCC 3/4/2014 Left rear jaw Mandiblctmy 3/25/2014 35RAD Completed on 06/03/2014 MRI 9/3/2014 25mm lobulated recurrence left mandible/floor of mouth carcinoma 9/23/14 Salvage Surgery MET(s) 9/23/14 Salvage Surgery Not Successful Chemo Recommended 1st Round of Cisplatin Chemo Started 10/20/14 Cisplatin stopped 11/20/14. Side affects to bad. Chemo started again 1/22/15 Carbo/Docetaxel Passed Away April 22,2015
| | | | Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) | Assistant Admin Patient Advocate (1000+ posts) Joined: Oct 2012 Posts: 1,275 Likes: 7 | When John had a problem with the insertion site of his PEG, he was referred to a stomatologist, who turned out to be a nurse who specialized in managing wounds. Maybe that is what you are looking for? We only saw her once at the hospital. She gave us some advice and it worked and that was it.
Last edited by gmcraft; 02-16-2015 07:47 AM.
Gloria She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016. | | | | Joined: Nov 2009 Posts: 644 Likes: 1 "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts) | "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts) Joined: Nov 2009 Posts: 644 Likes: 1 | I'm sad to hear that your mother is struggling again, Heidi. It seems very unfair that anyone should have to go through such painful and uncomfortable processes. I keep harping on this in all my posts: counselling, psychological help. Is there anyone giving you and you mother that sort of assistance?
You are both in my thoughts. Love Maureen
1996, ovarian cancer surgery + cisplatin and taxol. September, 2007, SCC of left lateral tongue. Excision. October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT. February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
| | | | Joined: Apr 2014 Posts: 236 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Apr 2014 Posts: 236 | Thanks Maureen
My moms been admitted into to hospital today . After this treatment the mucus became so thick that she could not swallow anything . She needs some IV fluids to help her feel better . A stoma wound care nurse is being called in to help with the open wound on her neck . It's getting bigger by the day. The leakage from it is like a faucet dripping . It's just aweful and very painful . I have never in my life seen anything like this before .
I'm glad she was admitted . It will give me a little break for a few days .
Thanks gmcraft for the advice on the stoma nurse. I mentioned it to the doctor and a stomatologist is being called in .
Sweetpe Caregiver RE:My Mother Age 70 Non Smoker SCC 3/4/2014 Left rear jaw Mandiblctmy 3/25/2014 35RAD Completed on 06/03/2014 MRI 9/3/2014 25mm lobulated recurrence left mandible/floor of mouth carcinoma 9/23/14 Salvage Surgery MET(s) 9/23/14 Salvage Surgery Not Successful Chemo Recommended 1st Round of Cisplatin Chemo Started 10/20/14 Cisplatin stopped 11/20/14. Side affects to bad. Chemo started again 1/22/15 Carbo/Docetaxel Passed Away April 22,2015
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Im so very sorry to hear about your mothers issues. I may not always comment on your posts but I do read every single one. Being in the hospital is a good place for her if she is so sick. Hopefully she will turn around soon and feel a little better. The IV will help perk her up.
Hang in there! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Apr 2014 Posts: 236 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Apr 2014 Posts: 236 | Thanks Christine
Yes the IV fluids seem to help a lot . Even though she has the feeding tube it still brings her down when she stops eating and drinking. She wasn't eating or drinking much . just a few sips and a couple of spoons at a time , but when that stops she seems to go down hill. Hopefully the IV fluids will pick her up and the special wound care nurse can get this open wound under control also.
Thanks for your help Heidi
Last edited by sweetpe1; 02-17-2015 02:32 AM.
Sweetpe Caregiver RE:My Mother Age 70 Non Smoker SCC 3/4/2014 Left rear jaw Mandiblctmy 3/25/2014 35RAD Completed on 06/03/2014 MRI 9/3/2014 25mm lobulated recurrence left mandible/floor of mouth carcinoma 9/23/14 Salvage Surgery MET(s) 9/23/14 Salvage Surgery Not Successful Chemo Recommended 1st Round of Cisplatin Chemo Started 10/20/14 Cisplatin stopped 11/20/14. Side affects to bad. Chemo started again 1/22/15 Carbo/Docetaxel Passed Away April 22,2015
| | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Sweetpe, unfortunately by not eating or drinking, nothing much can be done other than some IV fluids to keep her alive. She is going down because the body cannot continue fighting the cancer and chemo. At some point, the doctors will run out of options.
Have you considered having a professional sit down with your mother and have her state what her wishes are in this battle? When a person refuses to eat and drink, knowing it is prolonging the agony and causing not only imminent death, but unconscionable and gruesome suffering, it's important to understand her motives. Without a strong will to live and a desire to go all in at this stage, all the medical care in the world cannot change the outcome. Is it her desire to suffer like this?
This may sound cruel but it is reality at this point. Your mother's desires outweigh everyone, as painful as it may be for loved ones. We all deserve respect and dignity and to have our wishes honored. Please consider taking the steps to get your mother more involved in extending her life or accepting her decision. Even a healthy person can't continue living without food and water. The "rejuvenation" we see from IV fluids is often because the brain is dehydrated and the replenishment only lasts as long as it takes the body to need more.
I am truly sorry things have been so difficult.
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Sweet... sorry your mom is suffering. Cancer is brutal in that it can steal everything.
Your mom's wound likely isn't healing for a few reasons -firstly and foremost - the cancer is still there and likely in situ - the dr. is right. hopefully chemo will begin to shrink the tumor, and this will allow the hole to heal but it will be a long slow process. Also from a health stand point your mom is very fragile. Nutrition is the building blocks of healing - protein/iron - help her gain strength, but persistent cancer steals her nutrition to continue it's growth cycle. (this is why many cancer patients are so very thin at the end of their life) Also because her nutrition (strength) is being stolen - it is hard for her body to muster the strength to heal. It's so busy fighting the cancer and keeping all of her basic functions going.
I'm just trying to explain the process to you. This is all ultimately why her wound is not healing. The best they can do is pack it keep it clean and make sure it doesn't become infected, and hope the chemo will help.
Hugs and blessings to you and your mom.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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