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#18823 10-14-2005 03:59 PM
Joined: Mar 2002
Posts: 4,916
Likes: 63
OCF Founder
Patient Advocate (old timer, 2000 posts)
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OCF Founder
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2002
Posts: 4,916
Likes: 63
There are some sound words in these posts. Michael has just come through this and like me, he knows that getting depressed and "weepy' is part of the process. If you were not going through these emotions you wouldn't be normal. The people here will be around when you need them, for sound advice, for a place to speak freely about your emotions and have someone not only listen but relate to your situation, and with support when you need it. One day at a time. They won't all be good. Just get through each one the best you can, and at some point in the future the worst will be in your rearview mirror.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
#18824 10-14-2005 11:05 PM
Joined: Aug 2005
Posts: 44
Contributing Member (25+ posts)
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Contributing Member (25+ posts)

Joined: Aug 2005
Posts: 44
Thanks Brian,
The line your wrote "If you were not going through these emotions you wouldn't be normal." Is what my swallowing therapist told me and I forgot that until I read it from you. She also said if I didn't have any fears or questions she would be worried because that is normal.

I have great doctors, and health care professionals who always seem to have to the time to answer all my questions and concerns. Their compassion made it a little easier.

This site has been a true blessing to me. Thanks to all of you who take the time out to be there!
As Always
Love
Terry


Terry | 42 female| base of tongue w/swollen lymph nodes | Dx'd-Feb 05 | Stage IVA T2N2M0 | radiation/chemo 8 weeks finished 3rd week May/05 | bilateral neck dissection 9/2/05 45 nodes all neg.
#18825 10-15-2005 09:15 AM
Joined: Apr 2005
Posts: 68
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Apr 2005
Posts: 68
My biggest fear when I was first diagnosed was for my daughter. I was worried that I would not see her grow up and that she would not remember me. I think this is normal. You have just been given a major blow and it takes a while to come to terms with cancer. Stay strong and keep a positive attitude. You will make it through this and be there for your daughter.


Mucoepidermoid carcinoma-intermediate grade. Removed 3/05. Additional surgery to get clean margins and selective neck dissection 4/05. 30 lymph nodes removed. All clear!!
#18826 10-15-2005 04:06 PM
Joined: Aug 2003
Posts: 1,627
Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: Aug 2003
Posts: 1,627
Hi Jenn,
I'm also 44 and was 41 when I was diagnosed with cancer in my lower right jaw. I had a major surgery and radiation treatment and am cancer free today. I have 7 beautiful daughters and three grandaughters and I can certainly relate to how you feel when you think of your daughter. I would look at my youngest, who was 9 at my diagnosis, and realize that if I did die from this cancer then I had the easy job while the tough one was up to her, she had to go on without me and that is a tough thing. Please don't ignore the feelings you have, they are normal, very normal. BUT you also have to learn how to look at life in a new way, your life as you knew it is over and you are about to begin the process of saying "goodbye" to your former self. It's hard and it's long but it does happen. I think of my life in two stages now, before cancer and after cancer. While my life now is full and wonderful, I still get a homesick feeling now and again for my old life, the one where I still had that global safety net under me and thought of end of life as being well into my 80's. I may still live well into my 80's, but I don't EXPECT it now like I did before.
My advice to you is to allow yourself your sad feelings, let yourself cry, but limit it to an amount of time that won't affect your day to day life. I had reached the point after radiation that I couldn't be in the same room as my youngest without crying, which had a negative effect on her. I had allowed the cancer to define me and to consume me. Avoid that if you possibly can. We all need to wallow in self pity for a short time, but then we snap out of it and fight like hell to say alive. Take walks, talk to people close to you about how you feel, keep yourself busy.
Wishing you well.
Minnie


SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
#18827 10-16-2005 03:36 PM
Joined: Apr 2005
Posts: 2,676
JAM Offline
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Apr 2005
Posts: 2,676
Minnie, what wise words. Amy


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

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