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"OCF Canuck"
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Had my appointment and CT is being ordered. Ours is a teaching hospital so examination by "fellow/resident" revealed two enlarged lymph nodes but he said they are less than 1 cm which he felt was quite small. He advised that most cancerous lymph nodes are apparently greater than 1 cm. Or, maybe it is just early.

Regardless, CT has been requested and I have advised that I am available for cancellations or any available opening - regardless of the time of day or night. (Our CT machines run 18 hours/day). Hearing that they ARE lymph nodes was not good. Hearing that it is early was.

I don't know if there is any curative treatment that they can do anymore. They keep telling me one step at a time. I have a hard time hearing that because my mind has jumped WAY WAY ahead of that.

I know this negative thinking is bad - I just don't know how to make it stop.

Hugs

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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Pandora99

After reading your post I wanted to reach out and wish you the best in your upcoming Ct Scan. Try not to stress your self out to much. Hopefully you will get some good results and all that worry was nothing.

Good luck
Heidi


Sweetpe
Caregiver
RE:My Mother
Age 70
Non Smoker
SCC 3/4/2014 Left rear jaw
Mandiblctmy 3/25/2014
35RAD Completed on 06/03/2014
MRI 9/3/2014
25mm lobulated recurrence left mandible/floor of mouth carcinoma
9/23/14 Salvage Surgery
MET(s)
9/23/14 Salvage Surgery Not Successful
Chemo Recommended
1st Round of Cisplatin Chemo Started 10/20/14
Cisplatin stopped 11/20/14. Side affects to bad.
Chemo started again 1/22/15 Carbo/Docetaxel
Passed Away April 22,2015


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"OCF Kiwi Down Under"
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Hello Donna, this is still a time of uncertainty and I do know that this is scary.
I would be somewhat reassured by the Fellow and his opinion on the Lymph nodes. I guess the CT is to exclude any new tumour causing spread to the Lymphs. I also think that it is good news that he did not find/feel a mass.
So, " Don't borrow sorrow from tomorrow ".
Take one day at a time and I will keep you in my thoughts and prayers.
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
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"OCF Down Under, Kiwi"
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I want to endorse what Heidi and Tammy have written. My heart goes out to you. I'm also glad to hear about the good signs.

My favourite nurse at Auckland Hospital said 'one step at a time'. It's so true, isn't it? If you can stop you mind racing ahead, you will be able to get through the days before your CT results. Do something nice for yourself. A good book, music, meal, movie ... Take your mind off the constant static at the back of it saying 'what if?'

All my powerful be well vibes are zooming your way.


1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
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"OCF Canuck"
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Nodes are persnickety little shits. Hopefully you have a bit of an infection and nothing more. It's winter. People get the flu or just feel under the weather without actually being actively sick. And Look at PAULB - he's had numerous recurrences and retreatments. So in the unlikely event that it is cancer - there's always the potential to do something. Proton therapy? a bit more rads... etc... HUGS and Heads up!!!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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"OCF Canuck"
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CT test last night - I studied hard for it! I expect to hear from my doctor in the next couple of days. Lord give me PATIENCE!!! That is a quality I have always wanted to have but have yet to acquire.

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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Im waiting (patiently) with you for good news. Please keep us posted.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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"OCF Kiwi Down Under"
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Thinking of you Donna and sending many positive thoughts your way.
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
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"OCF Canuck"
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Call them today. They should have the results. Most have them within hours. Stop the suffering!!! hugs!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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"OCF Canuck"
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WHOO HOO......ALL CLEAR. Sometimes a lump (or two or three) - is just a lump! Thank you all for indulging me in my panic and your care and prayers. They obviously worked!

Hugs

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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