[quote=someguyjeff]I hope everything is going well for you. I am on the beginning stages of possibly the same journey as you as I have lung mets and am on about my 4th week of Erbitux. I have been and will be 'making sure I learn from you and everyone else to make the right choices as I go along. [/quote]

someguyjeff,

I am sorry to hear that you are on my path. I will try to report my trial results as I get them - I will have to look up the names of my trial drugs for you and post them here - I think it is MEDI4736 in combination with Tremelimumab. My last trial was KEYTRUDA which did not help with my cancer (although that does not mean it may not work with others).

I wish you the very best of luck, mate - my only real advice, unfortunately, is so terribly clich�d - try to stay strong and positive and never, ever give up!!!

Let us know how you are doing!!

The Hellion

Dear Hellion.

I'm very saddened to hear of your news regarding the metastasis. I sincerely hope that this next trial brings some promising results.

You will be in my thoughts and prayers.

Love in OCF,
Kerri

Hellion,

I'm really sad to hear the news of the spread and poor response to the trial. It sounds like you are moving forward with another option. It must be very difficult to remain strong and hopeful but that is what keeps you looking forward. Best wishes for a good trial.

You are an inspiration to keep fighting. I am sorry to hear of this latest news. I pray that the next trial has some great results. Thank you for all the information you provide as it has helped me find my balance and know there are options for myself.

So they finished rads to my back yesterday. This was some spot work t ease the pain I've had for several months. Things should start improving now, but because they radiated through my stomach I've felt pretty awful the last few days.

Otherwise nothing to report. I get the second infusion in two weeks so we just keep our fingers crossed and hope that this is doing the job. We have the first scan in about five weeks, I think.

Hope everyone is well!!

The Hellion

Hellion, are you nauseous? Did they give you Ondansetron? Make sure you keep up the fluid intake even if it is a small dose of radiation. Rest up now. I am cheering for you in this corner.

I am so glad you're on the new trial. I was asking my doctor about getting on one with MEDI. Please keep us updated with the symptoms and successes. I also may try Opivido as my doctor has a patient doing well with that for over 9 months. I know these are all shots at the dart board but some could be promising.

Glad to hear new treatment plan is underway. These new therapies are so promising, let this be one more positive result to add to the trials. Thanks for keeping us current. Good luck! don

donfoo, someguyjeff,

Thank you for your well wishes - we are so hopeful - the entire team is just so excited. someguyjeff, this is why you have to keep hoping and fighting even on the worst days - because someone will be the last person to die from this, which means someone will be the first person cured. Where we fall in that spectrum is how we will get to the cure and either one of us, both of us or all of us could be the ones that are cured. Never, ever stop believing.

Gloria, thank you for your kind thoughts. I am taking lots of anti nausea medicine but I have a dirty secret -- the unstoppable, unflappable, indefatigueable mighty, mighty Hellion has a VERY sensitive stomach. The smell of the radiation oncology center makes me queasy. That's our secret, though, I don't want my kryptonite getting around . I'm already feeling better - two mornings radiation free and I'm starting to hold down protein drinks and some solids. I whine (a lot as my eternally patient partner in life sadly knows) but I do always seem to pull through . I thank you for your concerns, though, as it means so much to me to know that this community always supports each other.

A special thanks to my aforementioned partner - my fantastic wife. She drives me everywhere while I need the walker, buys me anything and everything that may help me eat, makes me as many things a she can to get me to eat and hold down food, and listens to me whine, complain and moan without ever showing the toll it takes on her. You guys, I wish I could think of some way to balance the scales but I am far too far in debt now .

Thanks for listening!

The Hellion

I dont always comment but I read every single post and have been keeping track of this thread. Wishing all the best to everyone who is fighting, struggling and helping with trials. Thank you so much for being so unselfish by coming back to post updates, good and bad. These words will be here for many, many years helping future patients and caregivers until, as The Hellion put it... someone is the last one to die from this.

Best wishes with everything!