| | Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,293 Likes: 1 | Glad to hear he is over the treatment, that was quite an ordeal with so many procedures at once. Patience is needed as recovery takes time, focus on one day at a time. Things WILL improve! Don
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | | Joined: Jan 2013 Posts: 65 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Jan 2013 Posts: 65 | Went for a visit with surgeon yesterday. Charles passed his swallow test and has graduated to clear and mushy liquids with nose feeds to supplement. He is coughing a lot, I think due to dryness in his lungs. Convincing him to get moisture into his stoma hasn't clicked yet. )-: He wakes up depressed everyday but after a good truthful conversation about how good it is to be alive he pulls out of it. We'll be spending Thanksgiving today (at least an hour or so) with 20+ of our very loving friends. I think that will help him. Will take delicious soup he can eat.
The surgeon did recommend another round of radiation. YIKES. Due to nerve involvement. Don't quite understand yet but will see him again next week and will discuss further.
Wife/caregiver to Charles
ENT diagosed SCC Rt Tonsil Stage IV, MET 6 lymph nodes in neck 1/2001
Tonsillectomy, RND and six weeks RADS 2/2001
ENT diagnosis from CT scan, SCC in Rt tongue 2/13
25% of tongue removed 2/13 (clear margins)
SCC BOT with mets to 2 level 2 nodes and Lt. Delphian node 8/2014
Surgical biopsy shows cancer in larynx 9/2014
Laryngectomy, resection & rebuilt tongue w/ pectoral muscle, selective neck dissection 11/2014
Recurrences '16 HPV Neg No EGFR Mutations Detected
| | | | | Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,293 Likes: 1 | Hopefully Thanksgiving Day was a nice but short respite. Maybe the doctors feel the surgery might have left some cancer behind so the mention of radiation. Sometimes removing cancer wrapped around nerves and arteries is very difficult so radiation may be necessary to ensure no cancers remain.
Good luck.
Don
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | |
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