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| | Joined: Jan 2013 Posts: 1,294 Likes: 1 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,294 Likes: 1 | One of the side effects many overlook is the second guessing that can occur. Did we go to the right place? Did we agree to the right treatment plan? Was there another place that could have done it better? ......
Some people manage doubt quite well, others find it difficult and get quite stressed. If you have doubts now and tend to chant coulda-woulda-shoulda, get more input now and be 100% sure you are proceeding on the best path knowing all you know and reviewing all available options.
There are no do-overs and a short delay is a very small price to pay to have peace of mind if you are not 100% sure. All providers will fully understand.
Good luck
Don
Don
Male, 1955
Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
| | | | | Joined: Sep 2014 Posts: 1 Member | | Member
Joined: Sep 2014 Posts: 1 | Not heard of tomotherapy...my brother 42 has umdergone surgeryand his entire lower jaw has been removed n they ve put skin from the thighs but the flap is not responding coz no blood circulation in tht area..coz he is obese n diabetic...nyone any idea of nythng like this...even radiation n chemo is being delayed coz of this....
Namrata
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | If the mandibulectomy surgery failed the patient could end up having to go thru it again. The procedure has a relatively high failure rate but I doubt it is due to obesity. This is a serious problem! Until the doctors can fix his jaw then nothing else will be done. It might be a good plan to consider getting a second opinion at one of the country's top comprehensive cancer centers. It happened to me too and I am now living without half of my lower jaw.
Best wishes!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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