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Hello if you has cancer or have cancer can you please let me know how much you spend please


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About $750,000 for me. But my insurance paid all but about $65,000 or so.

Last edited by Uptown; 08-23-2014 12:20 PM.

SCC Stage IV
BOT primary
T2N2bM0
Cisplatin/5FU x 3
40 days radiation at 4 sites
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
PLS 02/13
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/
Osteoporosis 01/2018
Heart attack 06_2018

Living life LARGE with no quit in this guy!
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Man oral cancer cost 750k ur insurance bearly paid anything


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By now I must be the million dollar woman. After the too many hospital stays, too many surgeries, visiting nurses for 8+ months, HBO dives and hundreds of doctor visits and tests it has to be over the million mark. I had seen one of the 2 month hospital captivity bills but I cant remember what the amount was. Back then, my mind was too foggy to retain any info.


PS... Please relax about the $$$. Many treatment facilities offer charity care for those who are un or underinsured. When it comes to fighting for your life there is no price tag!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Hi Jhonny...glad to see you learned how to post. I never looked at the bill...I was too busy making sure I didn't have to pay over what my out of pocket costs were and was battling with my ins company. Just had to pay $3500 for my yearly deductible.
I'm thankful


Nancy (53 at dx)
Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs
7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo.
5/29/13 - Found primary
7/3/13 - TORS
7/8/13 - Emergency Surgery/Blood vessel burst in throat
8/9/13 - Peg in
9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck
10/14/13 - Radiation ended!
11/12/13 - PEG out!
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Thank you yea cristine showed me how


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I started paying attention when the insurance company called me before treatment had finished to tell me I was canceled because there was a lifetime limit of $500,000 and I had reached it.

I bet your a multi-million dollar woman, Christine. Priceless in my books!


SCC Stage IV
BOT primary
T2N2bM0
Cisplatin/5FU x 3
40 days radiation at 4 sites
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
PLS 02/13
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/
Osteoporosis 01/2018
Heart attack 06_2018

Living life LARGE with no quit in this guy!
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Posts: 64
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Getting sick is expensive


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That's why you should eat healthy and exercise when you are young. That's the only thing keeping me alive.


SCC Stage IV
BOT primary
T2N2bM0
Cisplatin/5FU x 3
40 days radiation at 4 sites
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
PLS 02/13
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/
Osteoporosis 01/2018
Heart attack 06_2018

Living life LARGE with no quit in this guy!
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Posts: 595
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I had two insurance plans and what one did not pay the other did, my total out of pocket was $500.00 out of $750,000. That includes gas for my truck to get to apointments. So I guess I am lucky in that respect. Semper-Fi Bob


Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
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Yea if I turn out cancer free im going to change me eating habits and exercise more


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Just Proton Therapy alone was $7,151 per day. Erbitux was like $18,000 per week, and so on. Mine is definitely over a million, probably several, but stopped counting a while ago. I have Medicare original, separate prescription, with a supplemental plan, which covers all co-pays, deductibles, hospital co-charges, and the 20% not covered by Medicare, so it payed off. My prescriptions alone are $4,500 per month, so the first month I'm out of the donut hole, in the catastrophic phase. If only they covered dental, but somehow that's seems to be gretting done.



10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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Man you guys spend a fortune it sucks that you guy's had to waist what you earned working hard all your lives just to live but atleast your here talking and helping me learn about this horrible disease


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my husband's treatment was covered quite well but there was a scare for the second surgery. They were not going to pay all of the first surgery (thankfully the hospital care took care of the extra 4,500 and we were able to make a change with our insurance so the next surgery was completely covered and everything after. Our biggest expense was gas driving 3 hours each way for all appointments, treatments, and now follow-up every 3 months. Thankfully we have always been able to stay at the Hope Lodge through the American Cancer Society since all visits usually require an overnight stay.

Now, with life after cancer we are actually saving money on groceries and eating out. We eat lots of fruit and vegetables, it surprising how much you can get into a veggie and fruit smoothie. We eat less meat, mostly chicken and turkey and seldom pork and beef (except for burgers on the grill that we buy the meat from a local friend who raises cows). I can often discourage picking up food or eating out when not at home because it is not a "healthy choice". No more pop on hand and I can get by with putting the salty snacks back before checking out at the grocery store when my husband isn't looking. (He actually thanked me recently for doing it.)

To sum it up, life is great!!! I often say it was one of the hardest years of our life but one of the best since we were able to spend so much quality time together other than the 7-8 weeks when things were rough. Can't wait for retirement, hopefully soon!!!


Husband diagnosed Oct '11 Cancer of the vocal cord Nov '11 removed right vocal cord. Neck Dissection, cancer in one node, .2, very small & contained) Jan '12 Radiation and Cisplatin, 6 doses. June '12 & Dec '12 clear Pet scan. April '13 Celebrating 1 year cancer free since treatment ended.
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Terrible your a good woman u stood by your husband during hard times when I get older I hope I get a wife like you if its not to personal can I know how old you and you husband are, at what age you guys got together and how many years do you guys have of marriage


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Terrib I mean sorry my phone sometimes changes my words


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Jhonny Lion, thank you for the compliment. Don't mind saying we both celebrated our birthdays and our anniversary this month. Everything within 9 days. 36 years married, he just turned 60 and I am 56. We met in college, he was a senior and I the new freshman. We were married after my sophomore year.

Trust all goes well with you and it is just something minor that can be dealt with easily. Avoid the internet, it can be quite scary and cause a lot of unneeded worry and stress.


Husband diagnosed Oct '11 Cancer of the vocal cord Nov '11 removed right vocal cord. Neck Dissection, cancer in one node, .2, very small & contained) Jan '12 Radiation and Cisplatin, 6 doses. June '12 & Dec '12 clear Pet scan. April '13 Celebrating 1 year cancer free since treatment ended.
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Jhonny Lion,

You need to go ahead and start the diet and exercise part how why wait?

I wouldn't consider money spent to save our life as "a waist". How much is a life worth? Keep in mind, a lot of it was paid by insurance in most cases.


SCC Stage IV
BOT primary
T2N2bM0
Cisplatin/5FU x 3
40 days radiation at 4 sites
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
PLS 02/13
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/
Osteoporosis 01/2018
Heart attack 06_2018

Living life LARGE with no quit in this guy!
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Posts: 1,291
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A lot of big numbers get thrown out there as the hospital bills are full "retail". By the time the hospital actually gets paid by insurance companies the true costs are much lower.

I spent a fair amount of time researching this and if you check the treatment codes against the published CMI rate book, something that is originally billed at $100 is paid at $10.

CMI is the official rates used by USA Medicare for reimbursements to medical services providers. It is a reasonable guide to what true payments are for services. You can use these rates as the low end of the scale.

One other side note. All radiation therapies use very expensive equipment. I came across but did not fully investigate the relationship between the medical equipment manufacturers, the medical facilities, and the government. It seemed like there are programs that basically influence the pricing of this equipment. Not some form of price fixing but more like supplemental forms of subsidies, grants, tax credits or breaks, to enable the financial equations to work out. If others have come across this sure would like to better understand just out of curiosity.


Don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
All the details, join at http://beatdown.cognacom.com
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Don, my numbers are net amounts paid, right from the EOB. My pharmacy amount paid in one month that had chemo, amifostine, neupogen and Kytril IV plus IV Vancomycin was just over $240,000.


SCC Stage IV
BOT primary
T2N2bM0
Cisplatin/5FU x 3
40 days radiation at 4 sites
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
PLS 02/13
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/
Osteoporosis 01/2018
Heart attack 06_2018

Living life LARGE with no quit in this guy!
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Terrib I know im getting to personal but was this your first marriage also how does chemotherapy and radiation feel im mouth cancer can someone please explain thankyou


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In addition to eat "healthy and exercise", I would add preventive maintenance i.e. get the Gardasil shot for your children, inform them and yourself re hi cost not only to the survivor but to their families. One mother I know of told her daughter early on, "Don't drink, don't smoke, don't chew and don't date boys that do!"


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



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Aside from some out of pocket expenses for a couple of specialists and a couple of the scans done privately, all my chemo and rads were done for free. We have a great public health system here.


Cheers, Dave (OzMojo)
19Feb2014 Diagnosed T2N2bM0 P16+ve SCC Tonsil.
31Mar2014 2 Cisplatin, 70gy over 7 weeks (completed 16May2014)
11August2014 PET/CT clear.
17July2019 5 years NED.
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Where do u live ozmojo


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Look on the left of the post. Dave (OzMojo) is from Australia.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Oooh ok thankyou


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[quote=Uptown]Don, my numbers are net amounts paid, right from the EOB. My pharmacy amount paid in one month that had chemo, amifostine, neupogen and Kytril IV plus IV Vancomycin was just over $240,000.[/quote]I guess the whole topic of what cancer "costs" is sort of lame in general. There are true cost for compensating providers which varies a lot based on local economies and contracts between providers and insurance companies. Policy holders have true out of pocket costs varying depending on local policies and rules (private vs social insurance) and variance in individual insurance policies.

No wonder the whole health insurance and healthcare business is such a mess and opaque at least here in the USA. frown


Don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
All the details, join at http://beatdown.cognacom.com
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Posts: 2,671
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I'm glad this topic of costs was raised because the cost of OC is astronomical no matter what your circumstances. And it can be difficult to assess depending on whether you have insurance or not or have a job and where you live. I hope any smokers out there or anyone considering whether or not to quit tobacco products will be aware of not only the actual financial costs which include living expenses while in treatment or loss of income, financial and emotional costs to families and continuing long term survivorship costs. If choosing NOT to quit, then attention should be given to the best insurance plan, building up your savings account, or moving to Australia or Canada, as well life insurance to protect your family for when you leave this world. Don't allow your family to sign for anything, because they will be paying for your OC even after you die. You could win the lottery, but even that won't pay for everything. If you are a non-smoker, then -

Be Smart, Don't Start!


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



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I don't know how anyone could cope with cancer without insurance.

I had major medical, and also a small cancer policy (family history). About a year and a half after treatment I went back and got all of my providers info and contacted each for detailed procedure codes and charges to file against the cancer policy. It was just under $500,000 total.


Survivor. 55yr male. Dx 07/09 SqCCa Stage IV, Rt Tonsil, Lt&Rt Lymph Nodes. Aborted tonsilectomy 07/09. Chemo port 07/09. PEG 09/09. Chemo - 3xCisplatin 6xErbitux. RTx35. Tx ended 11/09. CAT scan (clean) 01/10. PET scan (clean) 02/10. Port & PEG removed 04/10.
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