| Joined: Aug 2014 Posts: 64 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2014 Posts: 64 | Hello if you has cancer or have cancer can you please let me know how much you spend please
Teen with questions and willing to help and give support any way I can
| | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | About $750,000 for me. But my insurance paid all but about $65,000 or so.
Last edited by Uptown; 08-23-2014 12:20 PM.
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Aug 2014 Posts: 64 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2014 Posts: 64 | Man oral cancer cost 750k ur insurance bearly paid anything
Teen with questions and willing to help and give support any way I can
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | By now I must be the million dollar woman. After the too many hospital stays, too many surgeries, visiting nurses for 8+ months, HBO dives and hundreds of doctor visits and tests it has to be over the million mark. I had seen one of the 2 month hospital captivity bills but I cant remember what the amount was. Back then, my mind was too foggy to retain any info.
PS... Please relax about the $$$. Many treatment facilities offer charity care for those who are un or underinsured. When it comes to fighting for your life there is no price tag! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Aug 2011 Posts: 269 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Aug 2011 Posts: 269 | Hi Jhonny...glad to see you learned how to post. I never looked at the bill...I was too busy making sure I didn't have to pay over what my out of pocket costs were and was battling with my ins company. Just had to pay $3500 for my yearly deductible. I'm thankful
Nancy (53 at dx) Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs 7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo. 5/29/13 - Found primary 7/3/13 - TORS 7/8/13 - Emergency Surgery/Blood vessel burst in throat 8/9/13 - Peg in 9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck 10/14/13 - Radiation ended! 11/12/13 - PEG out!
| | | | Joined: Aug 2014 Posts: 64 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2014 Posts: 64 | Thank you yea cristine showed me how
Teen with questions and willing to help and give support any way I can
| | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | I started paying attention when the insurance company called me before treatment had finished to tell me I was canceled because there was a lifetime limit of $500,000 and I had reached it.
I bet your a multi-million dollar woman, Christine. Priceless in my books!
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Aug 2014 Posts: 64 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2014 Posts: 64 | Getting sick is expensive
Teen with questions and willing to help and give support any way I can
| | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | That's why you should eat healthy and exercise when you are young. That's the only thing keeping me alive.
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Jun 2007 Posts: 595 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2007 Posts: 595 | I had two insurance plans and what one did not pay the other did, my total out of pocket was $500.00 out of $750,000. That includes gas for my truck to get to apointments. So I guess I am lucky in that respect. Semper-Fi Bob
Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
| | | | Joined: Aug 2014 Posts: 64 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2014 Posts: 64 | Yea if I turn out cancer free im going to change me eating habits and exercise more
Teen with questions and willing to help and give support any way I can
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | Just Proton Therapy alone was $7,151 per day. Erbitux was like $18,000 per week, and so on. Mine is definitely over a million, probably several, but stopped counting a while ago. I have Medicare original, separate prescription, with a supplemental plan, which covers all co-pays, deductibles, hospital co-charges, and the 20% not covered by Medicare, so it payed off. My prescriptions alone are $4,500 per month, so the first month I'm out of the donut hole, in the catastrophic phase. If only they covered dental, but somehow that's seems to be gretting done.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Aug 2014 Posts: 64 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2014 Posts: 64 | Man you guys spend a fortune it sucks that you guy's had to waist what you earned working hard all your lives just to live but atleast your here talking and helping me learn about this horrible disease
Teen with questions and willing to help and give support any way I can
| | | | Joined: Feb 2012 Posts: 151 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Feb 2012 Posts: 151 | my husband's treatment was covered quite well but there was a scare for the second surgery. They were not going to pay all of the first surgery (thankfully the hospital care took care of the extra 4,500 and we were able to make a change with our insurance so the next surgery was completely covered and everything after. Our biggest expense was gas driving 3 hours each way for all appointments, treatments, and now follow-up every 3 months. Thankfully we have always been able to stay at the Hope Lodge through the American Cancer Society since all visits usually require an overnight stay.
Now, with life after cancer we are actually saving money on groceries and eating out. We eat lots of fruit and vegetables, it surprising how much you can get into a veggie and fruit smoothie. We eat less meat, mostly chicken and turkey and seldom pork and beef (except for burgers on the grill that we buy the meat from a local friend who raises cows). I can often discourage picking up food or eating out when not at home because it is not a "healthy choice". No more pop on hand and I can get by with putting the salty snacks back before checking out at the grocery store when my husband isn't looking. (He actually thanked me recently for doing it.)
To sum it up, life is great!!! I often say it was one of the hardest years of our life but one of the best since we were able to spend so much quality time together other than the 7-8 weeks when things were rough. Can't wait for retirement, hopefully soon!!!
Husband diagnosed Oct '11 Cancer of the vocal cord Nov '11 removed right vocal cord. Neck Dissection, cancer in one node, .2, very small & contained) Jan '12 Radiation and Cisplatin, 6 doses. June '12 & Dec '12 clear Pet scan. April '13 Celebrating 1 year cancer free since treatment ended.
| | | | Joined: Aug 2014 Posts: 64 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2014 Posts: 64 | Terrible your a good woman u stood by your husband during hard times when I get older I hope I get a wife like you if its not to personal can I know how old you and you husband are, at what age you guys got together and how many years do you guys have of marriage
Teen with questions and willing to help and give support any way I can
| | | | Joined: Aug 2014 Posts: 64 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2014 Posts: 64 | Terrib I mean sorry my phone sometimes changes my words
Teen with questions and willing to help and give support any way I can
| | | | Joined: Feb 2012 Posts: 151 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Feb 2012 Posts: 151 | Jhonny Lion, thank you for the compliment. Don't mind saying we both celebrated our birthdays and our anniversary this month. Everything within 9 days. 36 years married, he just turned 60 and I am 56. We met in college, he was a senior and I the new freshman. We were married after my sophomore year.
Trust all goes well with you and it is just something minor that can be dealt with easily. Avoid the internet, it can be quite scary and cause a lot of unneeded worry and stress.
Husband diagnosed Oct '11 Cancer of the vocal cord Nov '11 removed right vocal cord. Neck Dissection, cancer in one node, .2, very small & contained) Jan '12 Radiation and Cisplatin, 6 doses. June '12 & Dec '12 clear Pet scan. April '13 Celebrating 1 year cancer free since treatment ended.
| | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Jhonny Lion,
You need to go ahead and start the diet and exercise part how why wait?
I wouldn't consider money spent to save our life as "a waist". How much is a life worth? Keep in mind, a lot of it was paid by insurance in most cases.
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,293 Likes: 1 | A lot of big numbers get thrown out there as the hospital bills are full "retail". By the time the hospital actually gets paid by insurance companies the true costs are much lower.
I spent a fair amount of time researching this and if you check the treatment codes against the published CMI rate book, something that is originally billed at $100 is paid at $10.
CMI is the official rates used by USA Medicare for reimbursements to medical services providers. It is a reasonable guide to what true payments are for services. You can use these rates as the low end of the scale.
One other side note. All radiation therapies use very expensive equipment. I came across but did not fully investigate the relationship between the medical equipment manufacturers, the medical facilities, and the government. It seemed like there are programs that basically influence the pricing of this equipment. Not some form of price fixing but more like supplemental forms of subsidies, grants, tax credits or breaks, to enable the financial equations to work out. If others have come across this sure would like to better understand just out of curiosity.
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Don, my numbers are net amounts paid, right from the EOB. My pharmacy amount paid in one month that had chemo, amifostine, neupogen and Kytril IV plus IV Vancomycin was just over $240,000.
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Aug 2014 Posts: 64 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2014 Posts: 64 | Terrib I know im getting to personal but was this your first marriage also how does chemotherapy and radiation feel im mouth cancer can someone please explain thankyou
Teen with questions and willing to help and give support any way I can
| | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | In addition to eat "healthy and exercise", I would add preventive maintenance i.e. get the Gardasil shot for your children, inform them and yourself re hi cost not only to the survivor but to their families. One mother I know of told her daughter early on, "Don't drink, don't smoke, don't chew and don't date boys that do!"
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Mar 2014 Posts: 286 "OCF Down Under" Gold Member (200+ posts) | "OCF Down Under" Gold Member (200+ posts) Joined: Mar 2014 Posts: 286 | Aside from some out of pocket expenses for a couple of specialists and a couple of the scans done privately, all my chemo and rads were done for free. We have a great public health system here. Cheers, Dave (OzMojo) 19Feb2014 Diagnosed T2N2bM0 P16+ve SCC Tonsil. 31Mar2014 2 Cisplatin, 70gy over 7 weeks (completed 16May2014) 11August2014 PET/CT clear. 17July2019 5 years NED.
| | | | Joined: Aug 2014 Posts: 64 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2014 Posts: 64 |
Teen with questions and willing to help and give support any way I can
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Look on the left of the post. Dave (OzMojo) is from Australia. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Aug 2014 Posts: 64 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2014 Posts: 64 |
Teen with questions and willing to help and give support any way I can
| | | | Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,293 Likes: 1 | [quote=Uptown]Don, my numbers are net amounts paid, right from the EOB. My pharmacy amount paid in one month that had chemo, amifostine, neupogen and Kytril IV plus IV Vancomycin was just over $240,000.[/quote]I guess the whole topic of what cancer "costs" is sort of lame in general. There are true cost for compensating providers which varies a lot based on local economies and contracts between providers and insurance companies. Policy holders have true out of pocket costs varying depending on local policies and rules (private vs social insurance) and variance in individual insurance policies. No wonder the whole health insurance and healthcare business is such a mess and opaque at least here in the USA.
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | I'm glad this topic of costs was raised because the cost of OC is astronomical no matter what your circumstances. And it can be difficult to assess depending on whether you have insurance or not or have a job and where you live. I hope any smokers out there or anyone considering whether or not to quit tobacco products will be aware of not only the actual financial costs which include living expenses while in treatment or loss of income, financial and emotional costs to families and continuing long term survivorship costs. If choosing NOT to quit, then attention should be given to the best insurance plan, building up your savings account, or moving to Australia or Canada, as well life insurance to protect your family for when you leave this world. Don't allow your family to sign for anything, because they will be paying for your OC even after you die. You could win the lottery, but even that won't pay for everything. If you are a non-smoker, then -
Be Smart, Don't Start!
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: May 2010 Posts: 61 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: May 2010 Posts: 61 | I don't know how anyone could cope with cancer without insurance.
I had major medical, and also a small cancer policy (family history). About a year and a half after treatment I went back and got all of my providers info and contacted each for detailed procedure codes and charges to file against the cancer policy. It was just under $500,000 total.
Survivor. 55yr male. Dx 07/09 SqCCa Stage IV, Rt Tonsil, Lt&Rt Lymph Nodes. Aborted tonsilectomy 07/09. Chemo port 07/09. PEG 09/09. Chemo - 3xCisplatin 6xErbitux. RTx35. Tx ended 11/09. CAT scan (clean) 01/10. PET scan (clean) 02/10. Port & PEG removed 04/10.
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