| | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) |  Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Keep up the good work!!!
Whats the name of the mouthwash?
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Let's hope you are one of the few that manages to breeze through this Tx but this is around the time that most of us start to really feel the impact of the accumulation of radiation and chemo. It would be most helpful if you added a Signature Line so we know the whole picture. Good luck.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Oct 2013 Posts: 559 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2013 Posts: 559 Likes: 1 | Hi Blair - your case is very similar to mine in the side effects area. I too had very few during treatment; in fact it amazed the RO. He said he had never seen anyone have so few. Finally in weeks 6 and 7 the mucositis became pretty uncomfortable and later the ropey mucous arrived for a mid length visit.
My go-too mouthwash for pain was oral lidocaine; is that what you are using?
I am 6 months post treatment now and besides my taste for food still being screwed up and sinus drainage that wants to stick in the throat I have no other side effects.
It's good to see you are getting through this as well as you are. Keep writing about it, as it gives hope the new guys that follow in your footsteps
Tony
Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)
09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good
| | | | | Joined: May 2014 Posts: 8 Member | | OP Member
Joined: May 2014 Posts: 8 | Christine,
The oral rinse is called MuGard. It takes a prescription but it really works well. My radiologist is sold on it and claim most patients can cut way back on any pain killers. I find it great and only have taken a half pain pill at night occasionally. | | | | | Joined: May 2014 Posts: 8 Member | | OP Member
Joined: May 2014 Posts: 8 | I haven't had the mucus problem yet and only have a week and half to go. The oral rinse is MuGard and is great. My radiologist swears by it now and has all of his patients on it. Use it 6 times a day and for me it worked wonders, no pain and very little discomfort. Sorry to hear it takes that long to get taste straightened out. I sure miss a good steak and a good beer.
As your doctor, mine is amassed at my progress and attitude. I am way ahead of where they thought I would be now. | | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Blair lets hope you are one of the few that breezes thru this Tx. We don't see it that often but it does happen so make me proud...:)
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,293 Likes: 1 | Blair,
Glad the MuGard works. When started early it seems to work quite well for many.
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | |
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