| | Joined: Jan 2006 Posts: 757 Likes: 1 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Jan 2006 Posts: 757 Likes: 1 | Getting a 2nd or more opinions is a good idea. Between my initial treatment and a recurrence, I went to 4 different treatment facilities, and the medical recommendations were often very different. When I had a recurrence after having already had RT, I went to Johns Hopkins in Baltimore - the best choice for me. Hopkins is a teaching hospital and ranked in the top for cancer in general and head & neck cancer in particular. They get patients from all over the world coming there and help the patient and their family schedule everything (appointments, accommodations, etc.).
Wishing you and your mother the best!
Susan
SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2025 (ORN of lower jaw)
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I ended up going to 5 different cancer docs at completely different places and if I had stopped at nos 1, 2 or 3 I would be dead today.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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