| | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 4 | Sounds like Peg Wars bravado is back lol. I'm pro-peg, nasal too, if needed. All have pros and cons, and other factors are included in the need, which can be lifesaving. I had two peg tubes, still have one, and had to do TPN feedings also. One thing not often discussed, is a rare risk of cancer seeding from the primary in head and neck cancers from peg insertion during the endoscopy to the the stomach/peg, which can mimic infection in the area, so that should be monitored. http://www.wenourish.com/docs/cnw12_greaves_tumor_seeding.pdf
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Jan 2013 Posts: 1,294 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,294 Likes: 1 | Try to go as long as you can without one. You can always get one put in if you need one anytime down the road. Many who push through make it without one; like all things cancer, your own journey is unique. Can't hurt to try.
Don
Male, 1955
Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
| | | | | Joined: Oct 2013 Posts: 559 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2013 Posts: 559 Likes: 1 | I think Don is right, if you need a peg, get one; if you can fight it out without one, try to do that.
I lost weight all the way through treatment. My nurses told me they push for a peg when you've reached 10% body weight loss. I reached 10% on the last day of radiation. My nutritionist had fussed at me all the way through because I just kept losing weight. Believe it or not, you can continue to lose body weight even after treatment ends. After losing 32 during treatment, I lost 10 more after it was over (have gained 5 of it back). Treatment is certainly not a recommended weight loss technique, but I do like the new slim look; haven't been this skinny in 20 years.
As they say, it's different for everyone. You are the final say in what is best for you.
Keep fighting, you will get there.
Tony
Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)
09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good
| | | | | Joined: Jun 2014 Posts: 17 Member | | Member
Joined: Jun 2014 Posts: 17 | Hey John, I hope things are continuing to go well for you. And I wish I had had the guts to stand up and say no about the PEG. I am down to 9 treatments left and for the most part holding my own on weight...only lost 9 lbs...and I think that was due to not eating junk food anymore throughout the day. So good luck and as everyone as said you know your body best!!  Cathy G.
3/26/14 dx SCC R ventral tong;PNI Stag 1 age 49 PET Clear 4/18/14 re excis part gloss; Marg clear; R END all clean 6/12/14 start RAD IMRT x30 CathyG
| | | | | Joined: Jun 2014 Posts: 1 "OCF across the pond" Member | | "OCF across the pond" Member
Joined: Jun 2014 Posts: 1 | JD, I GOT THROUGH WITHOUT A TUBE - ALSO STAYED WITH LIGHT EXCERCISE THROUGHOUT TREATMENT, CHEERS | | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 |
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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