| | Joined: Oct 2013 Posts: 58 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Oct 2013 Posts: 58 | First chemo treatment was on 5/9. I'm barely coming out of the darkness. My treatment is every 3 weeks for 6 cycles. Cisplatin and adriamycn. Chemo sucks awhole new list of crap. Not sure how to handle the chemo.
8/2013 dx sarcoma lft mandible 10/22/2013 fibula free flap with mandiblectomy, peg,tracheotomy, 11/8/13 trach removal, 2nd mandible sx 12/13, 35 IMRT 1/2014.4/2014 chemo x6 only tolerated 3. (Seizures) repeat fibula free flap 1/2016
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | As far as I know from chemo (my friend Lucy had peritoneal cancer - her treatment was cisplatin and taxol, then a few others - she had three different rounds and ended up on a clinical trial)
Anyway they all have bad side effects. However, your body does eventually adapt to them. So normally, you are nauseated and usually week two you are at your weakest, then you begin to feel better then they bop you on the head again.
Many blessings to you.. and strength.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Oct 2013 Posts: 58 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Oct 2013 Posts: 58 | Another infection.......argh. beyond frustrated. Just started to eat after chemo (5/9) not sure if I can handle 5 more. Sitting on the "pity" pot right now sorry for that.....I find myself so easily frustrated.....Do the chemo's get easier?
8/2013 dx sarcoma lft mandible 10/22/2013 fibula free flap with mandiblectomy, peg,tracheotomy, 11/8/13 trach removal, 2nd mandible sx 12/13, 35 IMRT 1/2014.4/2014 chemo x6 only tolerated 3. (Seizures) repeat fibula free flap 1/2016
| | | | | Joined: Oct 2013 Posts: 58 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Oct 2013 Posts: 58 | Another infection.......argh. beyond frustrated. Just started to eat after chemo (5/9) not sure if I can handle 5 more. Sitting on the "pity" pot right now sorry for that.....I find myself so easily frustrated.....Do the chemo's get easier?
8/2013 dx sarcoma lft mandible 10/22/2013 fibula free flap with mandiblectomy, peg,tracheotomy, 11/8/13 trach removal, 2nd mandible sx 12/13, 35 IMRT 1/2014.4/2014 chemo x6 only tolerated 3. (Seizures) repeat fibula free flap 1/2016
| | | | | Joined: Nov 2009 Posts: 644 Likes: 1 "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts) | | "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts)
Joined: Nov 2009 Posts: 644 Likes: 1 | It's a long time since I had chemo but I can imagine how you feel. You should feel better in the third week and after a few cycles you learn how to deal better with the side effects.
Sending you all my empathy.
Maureen
1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Truthfully it think it depends on the chemo. From what I know of chemo - not through my own experience with it - but through helping my friend through it - you eventually build up a tolerance for it - so as the months pass it gets less difficult. You may still have some nausea but the human body is really a magnificent machine that adapts so slowly you will find that the chemos don't knock you as flat after each treatment. I am not sure if this is a good thing or bad as ideally if it impacts you greatly - chances are it's kicking the crap out of the cancer too. This is why a tolerance is not necessarily a good thing. Hugs my dear. Be kind to yourself and practice the art of self soothing. 
Last edited by Cheryld; 05-24-2014 07:45 AM.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Oct 2013 Posts: 58 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Oct 2013 Posts: 58 | Been in the hospital since Friday. Infection/ dehydration! Promised myself never to make dehydration mistake again....at any cost! Now I'm playing the waiting for the dr's to get back to you game. Feeling better
8/2013 dx sarcoma lft mandible 10/22/2013 fibula free flap with mandiblectomy, peg,tracheotomy, 11/8/13 trach removal, 2nd mandible sx 12/13, 35 IMRT 1/2014.4/2014 chemo x6 only tolerated 3. (Seizures) repeat fibula free flap 1/2016
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Im so sorry to hear you have been hospitalized Sandy! Ive been down that road and you feel just terrible. I hope you begin to feel better very soon.
If you are having problems taking in enough water, you can always ask your doc for a prescription to get hydrated at your hospital's out patient chemo lab. Its a good plan to keep this in the back of your mind so you dont get dehydrated again.
Best wishes for a quick recovery, feel better!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jun 2014 Posts: 3 Member | | Member
Joined: Jun 2014 Posts: 3 | Sandy, you are the only other person that I have read that has had two mandibularectomies, as I have had also. Mine were 11 months apart. It's pretty unusual and I have had a hard time finding answers since this is different. I had Sequemous Cell Carcinoma, which all started with leukaplakia. I hope you are doing better and feel free to write to me any time.
Sharon | | | | | Joined: Oct 2013 Posts: 58 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Oct 2013 Posts: 58 | In the hospital again even with outpatient hydradtion. I truly hate this. 3 chemos down dr considering no more how can this be right? Shouldn't I complete all 6? How can I handle all 6?
8/2013 dx sarcoma lft mandible 10/22/2013 fibula free flap with mandiblectomy, peg,tracheotomy, 11/8/13 trach removal, 2nd mandible sx 12/13, 35 IMRT 1/2014.4/2014 chemo x6 only tolerated 3. (Seizures) repeat fibula free flap 1/2016
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