| | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | brb, I think it's more men are such slobs that someone forgot to invite the women. There are quite a few for women survivors but most are geared towards breast cancer. Here is one. http://reelingandhealing.org
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | OP Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | The Livestrong Program is not only a FREE 12 week structured exercise "recovery" program for the survivor but the Y also gives the survivor a free 12 week membership with unlimited access not only for the survivor but for their family as well. If they later decide to join the Y, which I'm sure is their motivation to offer this, the Y waives all initation fees. You meet 2 times a week for 1 1/2 hours. Their instructors do have a laid out exercise program but you are free to exercise however you want, whether it's Spinning as I did most or Aerobics or Swimming or the Sauna, which was my wife's fav or resistance equipment or any combo. You must present a doctor's signed approval and you are evaluated at the beginning and at the end so yopu can see your progress. At my Y everyone climbs the Wall at "graduation". I scaled the beginners wall and the next thing I see is my wife, aka Sauna Queen, trying to scale the intermediate wall. She nor I didn't know there were different sections of the wall increasing in difficulty but she made it about 2/3 rds up before her arms gave out.
It costs appx $2000 to put someone through the program and the Y tries to rasie some money specifically earmarked to the Livestrong Program like the Spinarama we just did in April. Our goal was $15,000 and we ended raising over $23,000.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 | Sounds like a great program and congrats to my fellow David (when a David does something good all Davids bask in his accomplishment... especially here at the forum where there are so many of us).
Only wish the nearest one of these to me wasn't an hour away in LA traffic!
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Jan 2014 Posts: 31 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jan 2014 Posts: 31 | Yeah, the livestrong program looks, really, really good. My mom's been talking about rehab post treatment and I think she'll do that first but I called the local y and they will take her post rehab and work with her specific fitness goals which are entirely based around a cruise she's taking next year (knock wood).
Despite my snarkiness about the fly fishing, I'm super stoked to learn about the livestrong program.
Caregiver to mom Chris, symptoms started 12/18/13. Biopsy 1/18/14, Diagnosed t2n2 2/3 2014. 3x Carboplatin and Taxotere finished 4/21/14. Chemo/Rads 8 erbitux 36 rads began 5/12/2014. End 6/20/2014. Pnuemonia 6/23/2014. 1 month in hospital 3 in rehab. PEt NED 11/8/2014, T3 recurrence DX 3/4/2015. Hemiglossectomy/mandiblectomy 4/27/2015. 30 rads end 07/24/2015. 4 years NED.
| | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | I don't know what part of Texas you are in but a church in Plano offers rehab at no cost. There are licensed physical therapists and the equipment is geared for rehab.
The Texas chapter of Reel Recovery is very active with 2 events in the Hill Country.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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