| | Joined: Jun 2013 Posts: 262 Gold Member (200+ posts) |  Gold Member (200+ posts)
Joined: Jun 2013 Posts: 262 | Bart, what an amazing spirit you bring to this bruising adventure. I'm so glad they have options for you.... And so grateful that even as you go through all this, you come to this Forum and offer your kindness and support to so many others. Thank you!
(((HUGS)))
Lynn
53
T3N2aM0 HPV+
5/26/13 discovered painless superball-sized lymph node in neck
6/26/13 DX SCC R palatine tonsil
7/16/13 TORS tonsillectomy & selective ND, mets to 2 nodes
9/3/13 Cisplatin and rads begin, tolerated 1.5 of 3 planned chemo doses
10/16/13 Treatment ends
Dec 13 Ulcer appears at surgery site
Jan 17 Biopsy -- no cancer!
Feb 17 CT/PET Scan lights up tonsil bed & nasal cavity, docs say probably inflammation, don't panic, rescan when ulcer subsides
| | | | | Joined: Apr 2013 Posts: 319 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Apr 2013 Posts: 319 | Lynn, thank you so much for the (((HUGS)))! And not to mention, the kind words!
Hugs are the Bomb when you're healing/surviving!!!
Good luck on you upcoming PET rescan!
Bart
My intro: http://oralcancersupport.org/forums/ubbt...3644#Post16364409/09 - Dx OC Stg IV 10/09 - Chemo/3 Cisplatin, 40 rad 11/09 - PET CLEAN 07/11 - Dx Stage IV C. (Liver) 06/12 - PET CLEAN 09/12 - PET Dist Met (Liver) 04/13 - PET CLEAN 06/13 - PET Dist Met (Liver + 1 lymph node) 10/13 - PET - Xeloda ineffective 11/13 - Liver packed w/ SIRI-Spheres 02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node 03/15 - Begin 15 Rads 03/24 - Final Rad! Woot! 7/27/14 Bart passed away. RIP!
| | | | | Joined: Jun 2014 Posts: 6 Member | | Member
Joined: Jun 2014 Posts: 6 | Hi Bart, I'm Linda ... I just read a reply you wrote including a soldiers survival...I loved it, I two was shot through the chest ,both lungs and out the left arm, then I went from being a cancer survivor to recurrent, made it through again and then my hubby passed...and the damn thing came back.... I try to be at peace and adapt. And I'm usually pretty good about most of it.
Long story short, I enjoyed and believe what you wrote in your post, thank you
Two surgeries, removed upper left jaw and 1/2 of pallet second surgery front upper jaw and rest of pallet, obturator ( nice teeth) radiation,tired very tired, try to have fun with it  ...since they cut the bone to my tear duct if I dab a little dawn near my eye and blow my nose I can make bubble from my eye.
| | | | | Joined: Apr 2013 Posts: 319 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Apr 2013 Posts: 319 | Hi Linda Lucinda,
First, I have to thank you for the lovely message, and then comment on what a lovely name Lucinda is! I have a document that is sort of an annotated family history dating to The Virginia Colony in the 1660s, and it was a favorite name for members of my family line for at least a couple of centuries!
I'm impressed that you survived your chest wounds. I survived a flail chest in my last year in the army, one year before getting shot. My right lung was shredded by broken rib-ends (the car I'd been riding in was bouncing around with some definite enthusiasm) but I was fortunately unconscious at the time.
Please accept my sincere condolences on the death of your husband. You, Linda Lucinda, are one tough cookie and I salute you!
Welcome to the "Recurrence Club." I'm awaiting word from my medical team as to when I can start my next three weeks of rads to Zap my recently discovered 6th recurrence. This one is just a single "hot" lymph node, up on the outside of my esophogaus near the top of the stomach.
At or about the same time as we discovered that, we found (from the last CT w/contrast) and verified via ordinary Xray, that my colon was obstructing. I'm quite sure that this is a result of one of the repaired bullet holes adhering to the opposite intestinal wall (I get colonoscopies every 3 years, and they always find some that have to be pried apart to proceed up-stream.
And just to make things interesting; (old chinese curse, "May you live in interesting times") four weeks ago today, I developed a lingual hernia which had to be repaired first (we did that Monday.)
Wed, I had a consult with the GI walla who had done my colonoscopies since '02, but he doesn't have an opening until July 23, so I've emailed my med team and asked to get the rads started ASAP.
I've been pretty busy lately, never a dull moment, eh?
My intro: http://oralcancersupport.org/forums/ubbt...3644#Post16364409/09 - Dx OC Stg IV 10/09 - Chemo/3 Cisplatin, 40 rad 11/09 - PET CLEAN 07/11 - Dx Stage IV C. (Liver) 06/12 - PET CLEAN 09/12 - PET Dist Met (Liver) 04/13 - PET CLEAN 06/13 - PET Dist Met (Liver + 1 lymph node) 10/13 - PET - Xeloda ineffective 11/13 - Liver packed w/ SIRI-Spheres 02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node 03/15 - Begin 15 Rads 03/24 - Final Rad! Woot! 7/27/14 Bart passed away. RIP!
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